Children with medical complexity (CMC) have medical fragility and intensive care needs that
are not easily met by existing health care models. CMC may have a congenital or acquired …

The 21st century is witnessing a sea change in our thinking about 'disability'. Nowhere are
these developments more apparent than in the field of childhood disability, where traditional …

BACKGROUND AND OBJECTIVE: Health care use of children with medical complexity
(CMC), such as those with neurologic impairment or other complex chronic conditions …

Objective. Most children enjoy healthy childhoods with little need for specialized health care
services. However, some children experience difficulties in early childhood and require …

Background There are an estimated 5.9 million children with severe disabilities in the USA,
and most of them are cared for at home by their parents and families. Indirect evidence …

Background Asperger syndrome (AS) and high-functioning autism (HFA) are pervasive
developmental disorders (PDD) in individuals of normal intelligence. Childhood AS/HFA is …

Background: Children with chronic invasive ventilator dependence living at home are a
diverse group of children with special health care needs. Medical oversight, equipment …

Background Parents of children with chronic illness have reported decreased psychological
and physical quality of life (QoL) relative to parents of children without such illness, which …

Background Although it is expected that caring for a child with cerebral palsy (CP) can
impact on the quality of life (QOL) of caregivers, the QOL of carers' has yet to be adequately …

Bamm EL, Rosenbaum P. Family-centered theory: origins, development, barriers, and
supports to implementation in rehabilitation medicine. The concept of family-centered care …