Background: Palliative care for children and young people is a growing global health
concern with significant resource implications. Improved understanding of how palliative …

Background Children with life-limiting conditions often have complex needs, making it
challenging for services to provide satisfactory care. Few studies consider whether services …

Results: Core components of the role include: coordination of care needs, planning and
assessment, specialist support, emotional support, administration and logistics and …

Background: Dignity therapy is becoming established in adult settings, with research
supporting its effectiveness. Aims: This article aims to summarise and synthesise the …

Background Integration of care for children with complex care needs is developing slowly
internationally. There remains wide variation in the governance of, and access to, care for …

Although we know that families of seriously ill children experience spiritual distress,
especially at the end of the child's life, there is little information on the specific spiritual needs …

Background Mucopolysaccharidoses (MPS) are rare inherited metabolic disorders that
come under category three of life‐limiting conditions. Children born with this condition show …

Background In the last decade, the number of children with life‐limiting and life‐threatening
conditions in England has almost doubled, and it is estimated that worldwide, there are 1.2 …

Background: Paediatric palliative care (PPC) is an active, total approach to the holistic care
of the child and family. Close, long-lasting relationships between healthcare professionals …

Background: Despite international developments in paediatric palliative care (PPC), nurses
continue to report feeling unprepared, anxious and overwhelmed when caring for patients …