Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …

Background: Legacy has been invoked as a means for strengthening human attachments,
continuing bonds, and ensuring that individuals will be remembered; however, little is known …

Background Advance care planning (ACP) is reported to improve the quality of outcomes of
care among those with life-limiting conditions. However, uptake is low among people living …

Background: Worldwide, around 21 million children would benefit from palliative care and
over 7 million babies and children die each year. Whilst provision of paediatric palliative …

Aims: This feasibility study aimed to systematically identify and address the support needs of
parents of children with life-limiting illnesses and to assess whether the systematic approach …

Objectives To understand the experiences and perceptions of healthcare services of
children with life-limiting and life-threatening conditions and their family members, including …

Advance care planning enables parents to discuss their goal and wishes for the future
treatment and care of their life-limited or life-threatened child. Whilst research has identified …

Background: The number of children with a life-limiting condition is increasing. The mothers
of these children commonly provide extensive care at home for their child and are at a …

Pediatric palliative care (PPC) literature was utilized to identify barriers for early initiation of
palliative care at diagnosis among children with life-threatening diseases. Early integration …

Background: The greater proportion of children with a life-limiting condition (LLC) and their
families want to remain at home as much as possible. Building capability in paediatric …