Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …
challenging in an open science environment that promotes unrestricted access to genomic …
[HTML][HTML] A review of ancestrality and admixture in Latin America and the caribbean focusing on native American and African descendant populations
Genomics can reveal essential features about the demographic evolution of a population
that may not be apparent from historical elements. In recent years, there has been a …
that may not be apparent from historical elements. In recent years, there has been a …
[HTML][HTML] Addressing the need for indigenous and decolonized quantitative research methods in Canada
Though qualitative methods are often an appropriate Indigenous methodology and have
dominated the literature on Indigenous research methods, they are not the only methods …
dominated the literature on Indigenous research methods, they are not the only methods …
[HTML][HTML] Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada
Introduction Participatory research involving community engagement is considered the gold
standard in Indigenous health research. However, it is sometimes unclear whether and how …
standard in Indigenous health research. However, it is sometimes unclear whether and how …
[HTML][HTML] A marathon, not a sprint–neuroimaging, Open Science and ethics
MJS Beauvais, BM Knoppers, J Illes - Neuroimage, 2021 - Elsevier
Open Science is calling for a radical re-thinking of existing scientific practices. Within the
neuroimaging community, Open Science practices are taking the form of open data …
neuroimaging community, Open Science practices are taking the form of open data …
Hydrological perspectives on integrated, coordinated, open, networked (ICON) science
BS Acharya, B Ahmmed, Y Chen… - Earth and Space …, 2022 - Wiley Online Library
Hydrologic sciences depend on data monitoring, analyses, and simulations of hydrologic
processes to ensure safe, sufficient, and equal water distribution. These hydrologic data …
processes to ensure safe, sufficient, and equal water distribution. These hydrologic data …
[HTML][HTML] Indigenous and tribal peoples data governance in health research: A systematic review
There is increasing potential to improve the research and reporting on the health and
wellbeing of Indigenous and Tribal peoples through the collection and (re) use of population …
wellbeing of Indigenous and Tribal peoples through the collection and (re) use of population …
[HTML][HTML] Community perspectives on communicating about precision medicine in an Alaska native tribal health care system
RB Woodbury, JA Beans, KA Wark, P Spicer… - Frontiers in …, 2020 - frontiersin.org
Background: Precision medicine seeks to better tailor medical care to the needs of individual
patients, but there are challenges involved in communicating to patients, health care …
patients, but there are challenges involved in communicating to patients, health care …
[HTML][HTML] Power sharing, capacity building, and evolving roles in ELSI: The Center for the Ethics of indigenous genomic research
J Blanchard, V Hiratsuka, JA Beans… - … (Coral Gables, Fla.), 2020 - ncbi.nlm.nih.gov
Persistent, unresolved issues stemming from a legacy of scientific exploitation and bio-
colonialism have kept many tribal nations from participating in genomic research. The …
colonialism have kept many tribal nations from participating in genomic research. The …
Inclusion of American Indians and Alaskan Natives in large national studies: ethical considerations and implications for biospecimen collection in the HEALthy brain …
This manuscript is the result of an interdisciplinary team approach to examine the ethical
and cultural considerations of biospecimen collection among American Indian and Alaskan …
and cultural considerations of biospecimen collection among American Indian and Alaskan …