Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

M Hudson, NA Garrison, R Sterling, NR Caron… - Nature Reviews …, 2020 - nature.com
Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …

[HTML][HTML] A review of ancestrality and admixture in Latin America and the caribbean focusing on native American and African descendant populations

TC De Oliveira, R Secolin, I Lopes-Cendes - Frontiers in Genetics, 2023 - frontiersin.org
Genomics can reveal essential features about the demographic evolution of a population
that may not be apparent from historical elements. In recent years, there has been a …

[HTML][HTML] Addressing the need for indigenous and decolonized quantitative research methods in Canada

A Hayward, L Wodtke, A Craft, T Robin, J Smylie… - SSM-Population …, 2021 - Elsevier
Though qualitative methods are often an appropriate Indigenous methodology and have
dominated the literature on Indigenous research methods, they are not the only methods …

[HTML][HTML] Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada

K Murphy, K Branje, T White, A Cunsolo, M Latimer… - PLoS …, 2021 - journals.plos.org
Introduction Participatory research involving community engagement is considered the gold
standard in Indigenous health research. However, it is sometimes unclear whether and how …

[HTML][HTML] A marathon, not a sprint–neuroimaging, Open Science and ethics

MJS Beauvais, BM Knoppers, J Illes - Neuroimage, 2021 - Elsevier
Open Science is calling for a radical re-thinking of existing scientific practices. Within the
neuroimaging community, Open Science practices are taking the form of open data …

Hydrological perspectives on integrated, coordinated, open, networked (ICON) science

BS Acharya, B Ahmmed, Y Chen… - Earth and Space …, 2022 - Wiley Online Library
Hydrologic sciences depend on data monitoring, analyses, and simulations of hydrologic
processes to ensure safe, sufficient, and equal water distribution. These hydrologic data …

[HTML][HTML] Indigenous and tribal peoples data governance in health research: A systematic review

KE Griffiths, J Blain, CM Vajdic, L Jorm - International journal of …, 2021 - mdpi.com
There is increasing potential to improve the research and reporting on the health and
wellbeing of Indigenous and Tribal peoples through the collection and (re) use of population …

[HTML][HTML] Community perspectives on communicating about precision medicine in an Alaska native tribal health care system

RB Woodbury, JA Beans, KA Wark, P Spicer… - Frontiers in …, 2020 - frontiersin.org
Background: Precision medicine seeks to better tailor medical care to the needs of individual
patients, but there are challenges involved in communicating to patients, health care …

[HTML][HTML] Power sharing, capacity building, and evolving roles in ELSI: The Center for the Ethics of indigenous genomic research

J Blanchard, V Hiratsuka, JA Beans… - … (Coral Gables, Fla.), 2020 - ncbi.nlm.nih.gov
Persistent, unresolved issues stemming from a legacy of scientific exploitation and bio-
colonialism have kept many tribal nations from participating in genomic research. The …

Inclusion of American Indians and Alaskan Natives in large national studies: ethical considerations and implications for biospecimen collection in the HEALthy brain …

LN Bakhireva, C Nebeker, P Ossorio, J Angal… - Adversity and resilience …, 2020 - Springer
This manuscript is the result of an interdisciplinary team approach to examine the ethical
and cultural considerations of biospecimen collection among American Indian and Alaskan …