Ethical and methodological issues in interviewing persons with dementia

I Hellström, M Nolan, L Nordenfelt, U Lundh - Nursing Ethics, 2007 - journals.sagepub.com
People with dementia have previously not been active participants in research, with ethical
difficulties often being cited as the reason for this. A wider inclusion of people with dementia …

Personhood in dementia care: Developing a research agenda for broadening the vision

D O'Connor, A Phinney, A Smith, J Small… - …, 2007 - journals.sagepub.com
Dementia has been understood primarily as a biomedical phenomenon with a trajectory of
irrevocable decline related to neurodegenerative changes. However, growing evidence …

Emotional impact of dementia diagnosis: exploring persons with dementia and caregivers' perspectives

F Aminzadeh, A Byszewski, FJ Molnar… - Aging and Mental …, 2007 - Taylor & Francis
This paper examined the emotional impact of diagnosis disclosure on recently diagnosed
people with dementia. Thirty patient/caregiver dyads attending a Geriatric Day Hospital …

[图书][B] Quality of life and older people

J Bond, L Corner - 2004 - books.google.com
Quality of life and older people reviews the way that older people talk about their quality of
life and how this differs from the ways that younger people, researchers and scientists, policy …

How can we get access to the experiences of people with dementia? Suggestions and reflections

L Nygård - Scandinavian journal of occupational therapy, 2006 - Taylor & Francis
This paper suggests and discusses a methodological approach that aims to facilitate the
inclusion of people with dementia in research where the ambition is to better understand …

Towards a more inclusive vision of dementia care practice and research

M Nolan, T Ryan, P Enderby, D Reid - Dementia, 2002 - journals.sagepub.com
Drawing on recent literature this article explores the development of research with family
carers and people with dementia and identifies a number of themes that have emerged over …

Modifying the diary interview method to research the lives of people with dementia

R Bartlett - Qualitative health research, 2012 - journals.sagepub.com
Debates about involving people with dementia in qualitative research are extensive, yet the
range of methods used is limited. Researchers tend to rely on interview and/or observation …

Ageing in place and technologies of place: the lived experience of people with dementia in changing social, physical and technological environments

K Brittain, L Corner, L Robinson… - Sociology of health & …, 2010 - Wiley Online Library
This paper explores the varied meanings and lived experiences of older people with
dementia, in relation to everyday technologies in public spaces outside the home, through re …

[图书][B] Understanding behaviour in dementia that challenges: A guide to assessment and treatment

IA James, L Jackman - 2017 - books.google.com
The innovative Newcastle Challenging Behaviour Model for dementia care has recently
been updated, leading to new advances in the field. This revised second edition guide to …

Reflections and recommendations for conducting in-depth interviews with people with dementia

EK Cridland, L Phillipson… - Qualitative Health …, 2016 - journals.sagepub.com
Despite the importance and advantages of including people with dementia in research,
there are various challenges for researchers and participants to their involvement. This …