Lipomyelomeningocele represents a rare but complex neurological disorder that may
present with neurological deterioration secondary to an inherent tethered spinal cord …

Importance The Management of Myelomeningocele Study (MOMS), a randomized clinical
trial of prenatal vs standard postnatal repair for myelomeningocele, found that prenatal …

Objective To use data from the US National Spina Bifida Patient Registry (NSBPR) to
describe variations in Contexts of Care, Processes of Care, and Health Outcomes among …

Background The National Spina Bifida Patient Registry (NSBPR) was established in 2008,
as a partnership between the CDC and spina bifida (SB) clinics throughout the United …

Pediatric spina bifida (SB) and spinal cord injury (SCI) are unfortunately common in our
society, and their unique findings and comorbidities warrant special consideration. This …

BACKGROUND AND PURPOSE: Short-term results demonstrate that prenatal repair of a
myelomeningocele is associated with a reduction in hydrocephalus and an increased …

With an estimated 85% of individuals with spina bifida (SB) surviving into adulthood, SB-
specific transition to adult healthcare guidelines are warranted to address the diverse and …

Abstract Purpose of Review Obesity is a common comorbidity in individuals with spina
bifida. Carrying excess weight exacerbates the inherent health challenges associated with …

Spinal dysraphism occurs early in gestation because of an abnormality in the closure of the
neural tube. Defects can be classified as open or closed lesions based on clinical and …

Spina bifida's (SB) impact on cognitive, physical, and psychosocial functioning places
individuals at risk for mental health concerns. This article discusses the SB Mental Health …