[HTML][HTML] Autologous blood patch pleurodesis for secondary spontaneous pneumothorax: a narrative review, a retrospective case series and state of play in the UK

S Shakir, B Choo-Kang, C Ross, K Conroy, R Thorley… - Pulmonary …, 2023 - Springer
Introduction Treatment of prolonged air leak due to secondary spontaneous pneumothorax
is challenging. Autologous blood patch pleurodesis (ABPP) is a treatment option. Previous …

Transforming clinical research and science in bronchiectasis: EMBARC3, a European Respiratory Society Clinical Research Collaboration

JD Chalmers, S Aliberti, J Altenburg… - European …, 2023 - Eur Respiratory Soc
Bronchiectasis is a major health problem that is increasing in prevalence and burden
globally [1, 2]. The impact of bronchiectasis on patients and the healthcare system is …

ERS “CONNECT” Clinical Research Collaboration–moving multiple digital innovations towards connected respiratory care: addressing the over-arching challenges of …

JFM van Boven, D Drummond… - European …, 2023 - Eur Respiratory Soc
Extract In summer 2023, the European Respiratory Society (ERS) welcomed a new Clinical
Research Collaboration (CRC) focused on implementation of digital respiratory …

[HTML][HTML] The disease-specific clinical trial network for primary ciliary dyskinesia: PCD-CTN

J Raidt, B Maitre, P Pennekamp, J Altenburg… - ERJ open …, 2022 - Eur Respiratory Soc
Primary ciliary dyskinesia (PCD) is a rare genetic disorder characterised by impaired
mucociliary clearance leading to irreversible lung damage. In contrast to other rare lung …

[PDF][PDF] ERS CRC “CONNECT”-Moving multiple Digital innovations towards connected respiratory care: addressing the over-arching challenges of whole systems …

JFM van Boven, D Drummond, AHY Chan… - European …, 2023 - research.ed.ac.uk
Edinburgh Research Explorer Page 1 Edinburgh Research Explorer ERS CRC “CONNECT” -
Moving multiple digital innovations towards connected respiratory care Citation for published …

[HTML][HTML] Protocol for the EARCO Registry: a pan-European observational study in patients with α1-antitrypsin deficiency

T Greulich, A Altraja, M Barrecheguren… - ERJ open …, 2020 - Eur Respiratory Soc
Rationale and objectives Alpha-1 antitrypsin deficiency (AATD) is a genetic condition that
leads to an increased risk of emphysema and liver disease. Despite extensive investigation …

[HTML][HTML] Demographic and clinical characteristics of patients with α1-antitrypsin deficiency genotypes PI* ZZ and PI* SZ in the Spanish registry of EARCO

M Torres-Durán, JL López-Campos… - ERJ Open …, 2022 - Eur Respiratory Soc
Background The Spanish registry of α1-antitrypsin deficiency (AATD) integrated in the
European Alpha-1 Research Collaboration (EARCO) provides information about the …

[HTML][HTML] Unmet needs in severe asthma subtyping and precision medicine trials. Bridging clinical and patient perspectives

S Siddiqui, LC Denlinger, SJ Fowler… - American journal of …, 2019 - atsjournals.org
Asthma affects 300 million people worldwide. Most patients with chronic asthma respond
well to currently available therapy. However, approximately 3–5% of patients have severe …

The European multicentre bronchiectasis audit and research collaboration (EMBARC) ERS clinical research collaboration

S Aliberti, E Polverino, JD Chalmers… - European …, 2018 - Eur Respiratory Soc
The European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC) was
established in 2012 as a collaborative group within the Respiratory Infections Assembly of …

The BEAT-PCD (better experimental approaches to treat primary ciliary dyskinesia) clinical research collaboration

M Goutaki, S Crowley, E Dehlink… - European …, 2021 - Eur Respiratory Soc
The need for collaborative research networks as an effective way forward to improve
diagnosis and care of rare inherited diseases is constantly highlighted and primary ciliary …