Impact of pediatric critical illness and injury on families: an updated systematic review
KM Abela, D Wardell, C Rozmus… - Journal of pediatric …, 2020 - Elsevier
Abstract Problem Pediatric ICUs (PICU) that have adopted family-centered care models
welcome families to the critically ill child's bedside to partner with clinicians in decision …
welcome families to the critically ill child's bedside to partner with clinicians in decision …
Parental bereavement–impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review
PS Vig, JY Lim, RWL Lee, H Huang, XH Tan, WQ Lim… - BMC palliative …, 2021 - Springer
Background Losing a child tragically impacts the well-being and functioning of parents. With
these effects extending beyond emotional, physical morbidity and compromising self …
these effects extending beyond emotional, physical morbidity and compromising self …
The Development of a Communication Tool to Aid Parent-Centered Communication between Parents and Healthcare Professionals: A Quality Improvement Project
LV Marino, N Collaḉo, S Coyne, M Leppan… - Healthcare, 2023 - mdpi.com
Good communication is central to good healthcare. As a result of poor communication
between parents and healthcare professionals (HCPs) in clinical settings, this study aimed …
between parents and healthcare professionals (HCPs) in clinical settings, this study aimed …
Personalized communication with parents of children born at less than 25 weeks: moving from doctor-driven to parent-personalized discussions
MF Haward, A Payot, C Feudtner, A Janvier - Seminars in Perinatology, 2022 - Elsevier
Communication with parents is an essential component of neonatal care. For extremely
preterm infants born at less than 25 weeks, this process is complicated by the substantial …
preterm infants born at less than 25 weeks, this process is complicated by the substantial …
What does 'good'palliative care look like for children and young people? A qualitative study of parents' experiences and perspectives
Background: Worldwide, around 21 million children would benefit from palliative care and
over 7 million babies and children die each year. Whilst provision of paediatric palliative …
over 7 million babies and children die each year. Whilst provision of paediatric palliative …
Decision-making approaches for children with life-limiting conditions: results from a qualitative phenomenological study
S Vemuri, J Hynson, K Williams, L Gillam - BMC Medical Ethics, 2022 - Springer
Background For children with life-limiting conditions who are unable to participate in
decision-making, decisions are made for them by their parents and paediatricians. Shared …
decision-making, decisions are made for them by their parents and paediatricians. Shared …
Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study
Background Provision of and access to paediatric end-of-life care is inequitable, but
previous research on this area has focused on perspectives of health professionals in …
previous research on this area has focused on perspectives of health professionals in …
Assessment of bereaved caregiver experiences of advance care planning for children with medical complexity
Importance Advance care planning (ACP) is the process of discussing values and
preferences for care to help inform medical decision-making. Children with medical …
preferences for care to help inform medical decision-making. Children with medical …
Qualitative study of paediatric advance care planning through simulation: how we did it and the lessons learned
S Vemuri, M Heywood, J O'Neill… - International …, 2023 - journals.sagepub.com
Simulation is a well-established experiential educational tool in health care, which allows
clinicians to learn and practise skills via a replication of reality. However, its use as a …
clinicians to learn and practise skills via a replication of reality. However, its use as a …
Palliative care for children: methodology for the development of a national clinical practice guideline
KC van Teunenbroek, LCM Kremer, AAE Verhagen… - BMC palliative …, 2023 - Springer
Background Provision of paediatric palliative care for children with life-threatening or life-
limiting conditions and their families is often complex. Guidelines can support professionals …
limiting conditions and their families is often complex. Guidelines can support professionals …