Impact of pediatric critical illness and injury on families: an updated systematic review

KM Abela, D Wardell, C Rozmus… - Journal of pediatric …, 2020 - Elsevier
Abstract Problem Pediatric ICUs (PICU) that have adopted family-centered care models
welcome families to the critically ill child's bedside to partner with clinicians in decision …

Parental bereavement–impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review

PS Vig, JY Lim, RWL Lee, H Huang, XH Tan, WQ Lim… - BMC palliative …, 2021 - Springer
Background Losing a child tragically impacts the well-being and functioning of parents. With
these effects extending beyond emotional, physical morbidity and compromising self …

The Development of a Communication Tool to Aid Parent-Centered Communication between Parents and Healthcare Professionals: A Quality Improvement Project

LV Marino, N Collaḉo, S Coyne, M Leppan… - Healthcare, 2023 - mdpi.com
Good communication is central to good healthcare. As a result of poor communication
between parents and healthcare professionals (HCPs) in clinical settings, this study aimed …

Personalized communication with parents of children born at less than 25 weeks: moving from doctor-driven to parent-personalized discussions

MF Haward, A Payot, C Feudtner, A Janvier - Seminars in Perinatology, 2022 - Elsevier
Communication with parents is an essential component of neonatal care. For extremely
preterm infants born at less than 25 weeks, this process is complicated by the substantial …

What does 'good'palliative care look like for children and young people? A qualitative study of parents' experiences and perspectives

D Fields, LK Fraser, J Taylor, J Hackett - Palliative Medicine, 2023 - journals.sagepub.com
Background: Worldwide, around 21 million children would benefit from palliative care and
over 7 million babies and children die each year. Whilst provision of paediatric palliative …

Decision-making approaches for children with life-limiting conditions: results from a qualitative phenomenological study

S Vemuri, J Hynson, K Williams, L Gillam - BMC Medical Ethics, 2022 - Springer
Background For children with life-limiting conditions who are unable to participate in
decision-making, decisions are made for them by their parents and paediatricians. Shared …

Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study

A Papworth, J Hackett, B Beresford, F Murtagh… - BMC Palliative Care, 2023 - Springer
Background Provision of and access to paediatric end-of-life care is inequitable, but
previous research on this area has focused on perspectives of health professionals in …

Assessment of bereaved caregiver experiences of advance care planning for children with medical complexity

S Lord, C Moore, M Beatty, E Cohen… - JAMA network …, 2020 - jamanetwork.com
Importance Advance care planning (ACP) is the process of discussing values and
preferences for care to help inform medical decision-making. Children with medical …

Qualitative study of paediatric advance care planning through simulation: how we did it and the lessons learned

S Vemuri, M Heywood, J O'Neill… - International …, 2023 - journals.sagepub.com
Simulation is a well-established experiential educational tool in health care, which allows
clinicians to learn and practise skills via a replication of reality. However, its use as a …

Palliative care for children: methodology for the development of a national clinical practice guideline

KC van Teunenbroek, LCM Kremer, AAE Verhagen… - BMC palliative …, 2023 - Springer
Background Provision of paediatric palliative care for children with life-threatening or life-
limiting conditions and their families is often complex. Guidelines can support professionals …