Stigma and cervical cancer prevention: a scoping review of the US literature

CE Peterson, A Silva, AH Goben, NP Ongtengco… - Preventive …, 2021 - Elsevier
Cervical cancer is preventable through HPV vaccination and screening however, uptake
falls below national targets. A scoping review was conducted to describe stigmas related to …

[HTML][HTML] Assessing diversity in newborn genomic sequencing research recruitment: Race/ethnicity and primary spoken language variation in eligibility, enrollment, and …

JA Cakici, D Dimmock, S Caylor, M Gaughran… - Clinical Therapeutics, 2023 - Elsevier
Purpose Diagnostic genomic research has the potential to directly benefit participants. This
study sought to identify barriers to equitable enrollment of acutely ill newborns into a …

Using indigenous standards to implement the CARE principles: Setting expectations through tribal research codes

SR Carroll, I Garba, R Plevel, D Small-Rodriguez… - Frontiers in …, 2022 - frontiersin.org
Biomedical data are now organized in large-scale databases allowing researchers
worldwide to access and utilize the data for new projects. As new technologies generate …

Expanded ethical principles for research partnership and transdisciplinary natural resource management science

H Wilmer, AM Meadow, AB Brymer, SR Carroll… - Environmental …, 2021 - Springer
Natural resource researchers have long recognized the value of working closely with the
managers and communities who depend on, steward, and impact ecosystems. These …

Determining the connectivity of tribal communities to wastewater treatment facilities for use in environmental contamination and exposure assessments by wastewater …

M Menchú-Maldonado, DE Novoa… - Journal of Exposure …, 2024 - nature.com
Background Limited information is available on the connectivity of Tribal communities to
wastewater treatment facilities (WWTFs). This is important for understanding current …

Complicated legacies: The human genome at 20

KM Jones, R Cook-Deegan, CN Rotimi, SL Callier… - Science, 2021 - science.org
Millions of people today have access to their personal genomic information. Direct-to-
consumer services and integration with other “big data” increasingly commoditize what was …

Racial/ethnic differences in anorexia and bulimia diagnoses among US college students

A Van Dyne, N Washington, M Villodas, T Cronan - Eating Behaviors, 2023 - Elsevier
This study examined the prevalence of anorexia nervosa (AN) and bulimia nervosa (BN)
diagnoses among college students from different racial/ethnic backgrounds. Utilizing …

The impact of communicating uncertainty on public responses to precision medicine research

CL Ratcliff, B Wong, JD Jensen… - Annals of Behavioral …, 2021 - academic.oup.com
Background Precision medicine research depends upon recruiting large and diverse
participant cohorts to provide genetic, environmental, and lifestyle data. How prospective …

The commercialization of biospecimens from Indigenous Peoples: A scoping review of benefit-sharing

T Tone-Pah-Hote, N Redvers - Frontiers in Medicine, 2022 - frontiersin.org
Background There is ongoing and increasing interest in the commercialization of
biospecimen-derived products from Indigenous Peoples. Discourse on benefit-sharing …

[HTML][HTML] Exploring potential drivers of patient engagement with their health data through digital platforms: A scoping review

R van Kessel, S Ranganathan, M Anderson… - International journal of …, 2024 - Elsevier
Background Patient engagement when providing patient access to health data results from
an interaction between the available tools and patients' individual capabilities. The recent …