Diagnostic experience reported by caregivers of patients with frontotemporal degeneration

LM Besser, JE Galvin - Neurology: Clinical Practice, 2020 - AAN Enterprises
Objective To describe the experience of obtaining a diagnosis of frontotemporal
degeneration (FTD) for patients and caregivers. Methods Data came from a 2017 web …

[HTML][HTML] In vivo diagnosis of TDP-43 proteinopathies: in search of biomarkers of clinical use

JI López-Carbonero, I García-Toledo… - Translational …, 2024 - Springer
TDP-43 proteinopathies are a heterogeneous group of neurodegenerative disorders that
share the presence of aberrant, misfolded and mislocalized deposits of the protein TDP-43 …

The communication needs of people with primary progressive aphasia and their family: a scoping review

K Davies, T Howe, J Small, GYR Hsiung… - Aphasiology, 2024 - Taylor & Francis
Language-led dementias, collectively called primary progressive aphasia (PPA), are caused
by relatively focal damage to the language networks of the brain. The progressive language …

Burden of caregivers of patients with frontotemporal lobar degeneration–a scoping review

T Karnatz, J Monsees, D Wucherer… - International …, 2021 - cambridge.org
Background: Frontotemporal lobar degeneration (FTLD) is the second-most common cause
of young-onset dementia. Personality and behavior changes lead to high caregiver stress …

My experience of living with nonfluent/agrammatic variant primary progressive aphasia: Challenges, compensatory strategies and adaptations

JT Douglas - … Journal of Language & Communication Disorders, 2023 - Wiley Online Library
Background Primary progressive aphasia (PPA) is a rare neurodegenerative brain disorder
characterized by declining language ability. There is currently no way to reverse or slow the …

Perceived burden among caregivers of patients with frontotemporal degeneration in the United States

LM Besser, JE Galvin - International psychogeriatrics, 2019 - cambridge.org
Background: Frontotemporal degeneration (FTD) dementia often begins before age 60 and
predominantly presents as four subtypes with prominent features of language, behavior …

Recent advances in frontotemporal dementia

MC Tartaglia, IRA Mackenzie - Canadian Journal of Neurological …, 2023 - cambridge.org
Frontotemporal dementia (FTD) is a devastating neurodegenerative condition for which
there is currently no effective treatment. Although it is much less common than Alzheimer's …

[HTML][HTML] Proteomics of the dentate gyrus reveals semantic dementia specific molecular pathology

MO Mol, SSM Miedema, S Melhem, KW Li… - Acta neuropathologica …, 2022 - Springer
Semantic dementia (SD) is a clinical subtype of frontotemporal dementia consistent with the
neuropathological diagnosis frontotemporal lobar degeneration (FTLD) TDP type C, with …

Experiences of living with primary progressive aphasia: A scoping review of qualitative studies

K Davies, T Howe - … Journal of Alzheimer's Disease & Other …, 2020 - journals.sagepub.com
Introduction: Understanding the experiences of people who live with primary progressive
aphasia (PPA) can inform the development of appropriate speech-language pathology …

[HTML][HTML] Neurodegenerative disease and the experience of homelessness

SD Piña-Escudero, L López, S Sriram… - Frontiers in …, 2021 - frontiersin.org
Introduction: Today, half of the American homeless population is older than 50 years of age.
This shift in age distribution among people experiencing homelessness has challenged our …