Privacy and confidentiality of genetic information: what rules for the new science?

MR Anderlik, MA Rothstein - Annual review of genomics and …, 2001 - annualreviews.org
This review covers the ethical, legal, and policy issues associated with the generation and
dissemination of genetic information. First, conceptual issues, such as the definition of terms …

Expanding the ethical analysis of biobanks

MA Rothstein - Journal of Law, Medicine & Ethics, 2005 - cambridge.org
Biobanks are repositories of human biological materials collected for biomedical research.
There are over 300 million stored specimens in the United States, and the number grows by …

[图书][B] Resolving ethical dilemmas: a guide for clinicians

B Lo - 2009 - books.google.com
Every day clinicians encounter ethical dilemmas that have a direct impact on patient care.
This timely Fourth Edition gives you expert guidance in approaching a wide range of ethical …

Innovative health technologies and the social: redefining health, medicine and the body

A Webster - Current sociology, 2002 - journals.sagepub.com
This paper explores the growth and social implications of what are regarded as highly
innovative technologies in health. Conventional medical sociology and the sociology of …

Genetic privacy and the law: an end to genetics exceptionalism

LO Gostin, JG Hodge Jr - Jurimetrics, 1999 - JSTOR
While the proliferation of human genetic information promises to achieve many public
benefits, the acquistion, use, retention, and disclosure of genetic data threatens individual …

Disentangling privacy from property: toward a deeper understanding of genetic privacy

SM Suter - Geo. Wash. L. Rev., 2003 - HeinOnline
With the mapping of the human genome, genetic privacy has become a concern to many.
People care about genetic privacy because genes play an important role in shaping us-our …

Ethical and legal implications of pharmacogenomics

MA Rothstein, PG Epps - Nature Reviews Genetics, 2001 - nature.com
Pharmacogenomics is the application of genomics technology to the discovery and
development of drugs. A greater understanding of the way in which individuals with a …

[图书][B] Addiction neuroethics: The promises and perils of neuroscience research on addiction

A Carter, W Hall - 2011 - books.google.com
Addiction is a significant health and social problem and one of the largest preventable
causes of disease globally. Neuroscience promises to revolutionise our ability to treat …

What is genetic discrimination, and when and how can it be prevented?

MA Rothstein, MR Anderlik - Genetics in Medicine, 2001 - gimjournal.org
The public policy debate concerning the desirability and scope of legislation prohibiting
genetic discrimination has become increasingly volatile. Last year, a provocative opinion …

Evolving approaches to the ethical management of genomic data

JE McEwen, JT Boyer, KY Sun - Trends in Genetics, 2013 - cell.com
The ethical landscape in the field of genomics is rapidly shifting. Plummeting sequencing
costs, along with ongoing advances in bioinformatics, now make it possible to generate an …