Evolving approaches to the ethical management of genomic data

JE McEwen, JT Boyer, KY Sun - Trends in Genetics, 2013 - cell.com
The ethical landscape in the field of genomics is rapidly shifting. Plummeting sequencing
costs, along with ongoing advances in bioinformatics, now make it possible to generate an …

Genetic exceptionalism & legislative pragmatism

MA Rothstein - The Ethics of Public Health, Volumes I and II, 2018 - taylorfrancis.com
Can passing antidiscrimination laws ever be a bad idea? Yes, if broad policy reform is
abandoned in favor of gengtic-specific legislation. But in spite of its serious flaws, both in …

Health privacy in the electronic age

MA Rothstein∗ - The Journal of legal medicine, 2007 - Taylor & Francis
Health care expenditure in the United States exceeds $2 trillion a year, 1 and on a per capita
basis far exceeds the expenditure of any other country. 2 Much of this money is not well …

[图书][B] Health care regulation in America: Complexity, confrontation, and compromise

RI Field - 2006 - books.google.com
Regulation shapes all aspects of America's fragmented health care industry, from the flow of
dollars to the communication between physicians and patients. It is the engine that …

Perception, experience, and response to genetic discrimination in Huntington disease: The international RESPOND‐HD study

C Erwin, JK Williams, AR Juhl… - American Journal of …, 2010 - Wiley Online Library
Genetic discrimination—defined as the denial of rights, privileges, or opportunities or other
adverse treatment based solely on genetic information (including family history)—is an …

Genophobia: What is wrong with genetic discrimination?

CS Diver, JM Cohen - University of Pennsylvania Law Review, 2001 - JSTOR
The decoding of the human genome, announced with great fanfare by President Bill Clinton
and Prime Minister Tony Blair in June, 2000, 1 marked a hugely symbolic milestone in the …

Genetic discrimination, genetic privacy: rethinking employee protections for a brave new workplace

PT Kim - Nw. UL Rev., 2001 - HeinOnline
* Professor of Law, Washington University School of Law, St. Louis; AB 1984, Harvard
University; JD 1988, Harvard Law School. I am grateful to Christopher Javillonar, Robyn …

Genes wide open: Data sharing and the social gradient of genomic privacy

T Haeusermann, M Fadda, A Blasimme… - AJOB Empirical …, 2018 - Taylor & Francis
This study reports on 13 semistructured in-depth interviews to qualitatively explore the
experiences of individuals who publicly shared their direct-to-consumer genetic testing …

Genetic exceptionalism and legislative pragmatism

MA Rothstein - The Journal of Law, Medicine & Ethics, 2007 - journals.sagepub.com
One of the most important and contentious policy issues surrounding genetics is whether
genetic information should be treated separately from other medical information. The view …

Tantamount to Fraud?: Exploring Non-Disclosure of Genetic Information in Life Insurance Applications as Grounds for Policy Rescission

AER Prince - Health Matrix, 2016 - HeinOnline
Many genetic counselors recommend that individuals secure desired insurance policies,
such as life insurance, prior to undergoing predictive genetic testing. It has been argued …