Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study

A Papworth, J Hackett, B Beresford, F Murtagh… - BMC Palliative Care, 2023 - Springer
Background Provision of and access to paediatric end-of-life care is inequitable, but
previous research on this area has focused on perspectives of health professionals in …

“It is a whole different life from the life I used to live”: assessing parents' support needs in paediatric palliative care

SM Aoun, R Stegmann, R Deleuil, S Momber… - Children, 2022 - mdpi.com
Aims: This feasibility study aimed to systematically identify and address the support needs of
parents of children with life-limiting illnesses and to assess whether the systematic approach …

Using the concept of health literacy to understand how people living with motor Neurone disease and Carers engage in Healthcare: A longitudinal qualitative study

C Paynter, S Mathers, H Gregory, AP Vogel, M Cruice - Healthcare, 2022 - mdpi.com
The growing body of information-seeking and decision-making literature in motor neurone
disease (MND) has not yet explored the impact of health literacy. Health literacy relates to …

Supporting the dying is a community responsibility

S M. Aoun - Palliative Care and Social Practice, 2022 - journals.sagepub.com
Palliative Care & Social Practice 16 2 journals. sagepub. com/home/pcr health care sectors.
17, 28, 29 In Australia, the Healthy End of Life Project (HELP) uses a community …

Palliative and end-of-life care for people living with motor neurone disease: ongoing challenges and necessity for shifting directions

VC Velaga, A Cook, K Auret, T Jenkins, G Thomas… - Brain Sciences, 2023 - mdpi.com
Although the progressive clinical trajectory of motor neurone disease (MND) is widely
understood, multiple challenges remain preventing optimal end-of-life care for this …

Public health palliative care and public palliative care education

G Bollig, JP Rosenberg - Healthcare, 2023 - mdpi.com
This Special Issue,“Public Health Palliative Care (PHPC) and Public Palliative Care
Education (PPCE)”, highlights recent advances and challenges in PHPC and PPCE. The …

The epidemiology of dying within 48 hours of presentation to emergency departments: a retrospective cohort study of older people across Australia and New Zealand

AL Sweeny, N Alsaba, L Grealish, K Denny… - Age and …, 2024 - academic.oup.com
Background Emergency department (ED) clinicians are more frequently providing care,
including end-of-life care, to older people. Objectives To estimate the need for ED end-of-life …

Integrating place-based and virtual models of palliative care: A case report

K Toll, A Villis, J Moullin - Journal of Telemedicine and …, 2024 - journals.sagepub.com
Palliative care management in rural and remote areas generally relies on local resources
including a primary healthcare professional and a local health facility. Either in the absence …

Dying in hospital is worse for non‐cancer patients. A regional cross‐sectional survey of bereaved relatives' views

A Kasdorf, G Dust, N Schippel, H Pfaff… - European Journal of …, 2022 - Wiley Online Library
Objective The aim of the study is to examine differences in hospital care between patients
with cancer and non‐cancer conditions in their dying phase, perceived by bereaved …

Consultant-led UK paediatric palliative care services: professional configuration, services, funding

A Bedendo, S Hinde, B Beresford… - BMJ Supportive & …, 2024 - spcare.bmj.com
Objectives To systematically gather information on the professional team members, services
provided, funding sources and population served for all consultant-led specialised …