The meaning of dying and death for children, their carers, and families: a scoping review

CM Lamb, K Ramer, O Amodu, K Groenenboom - BMC Palliative Care, 2023 - Springer
Background The meaning of dying and death are underexplored concepts for Canadian
children. Subsequently, it is unclear how children and stakeholders make meaning of …

Hospital, hospice, or home: A scoping review of the importance of place in pediatric palliative care

M Walker, D Nicolardi, T Christopoulos… - Palliative & Supportive …, 2023 - cambridge.org
Background Palliative care necessitates questions about the preferred place for delivering
care and location of death. Place is integral to palliative care, as it can impact proximity to …

The emotional experience of caring for children in Pediatric Palliative Care: a qualitative study among a home-based Interdisciplinary Care Team

P Rico-Mena, J Güeita-Rodríguez, R Martino-Alba… - Children, 2023 - mdpi.com
The healthcare providers caring for children with life-threatening illnesses experience
considerable compassion fatigue. The purpose of this study was to describe the feelings and …

[HTML][HTML] Challenges in Preloss care to parents facing their Child's end-of-life: a qualitative study from the clinicians perspective

EM Kochen, SCCM Teunissen, PA Boelen, F Jenken… - Academic pediatrics, 2022 - Elsevier
Introduction Bereavement care for parents predominantly focuses on care after child loss.
However, Health Care Professionals (HCPs) feel responsible for supporting parents who are …

[HTML][HTML] “The medicine is the easy part”: Pediatric physicians' emotional labor in end-of-life care

AM Gengler - SSM-Qualitative Research in Health, 2023 - Elsevier
Physicians who care for children with life-threatening conditions are uniquely positioned to
support families through the dying phase when treatment efforts have failed. Taking on this …

“Holding back my own emotions”: Evaluation of an online education module in pediatric end-of-life care

D Rawlings, M Winsall, H Yin… - Journal of Child Health …, 2024 - journals.sagepub.com
Providing quality end-of-life care to a child who is dying in hospital can be stressful and
challenging, and health professionals often feel ill-prepared and require additional support …

A resiliência do enfermeiro no cuidado à criança que vivencia a terminalidade

BRV Andrade, JXP Cunha, CS Biondo - Rev. enferm. UFSM, 2020 - pesquisa.bvsalud.org
Objetivo: investigar a resiliência de enfermeiros no cuidado à criança que vivencia a
terminalidade na terapia intensiva. Método: estudo qualitativo, com 12 enfermeiras das …

Caring for the caring professionals within a cancer hospital: Research into compassion fatigue, burnout, and distress

J Drake, M Walker, N Gallant, E Sturgess… - Australian Social …, 2022 - Taylor & Francis
Providing quality care to people approaching the end of their life within the hospital system
is important. To date, only limited research has investigated the impact that providing care to …

Nurses' experiences of providing palliative care for children with life-limiting conditions

BB Reid, P Brogan - International Journal of Palliative …, 2024 - magonlinelibrary.com
Background: Paediatric palliative care (PPC) has evolved in response to the increased
prevalence of children who have been diagnosed with life-limiting conditions. Nursing care …

[PDF][PDF] Health Professionals' Views on Pediatric Palliative Care: A Mixed Methods Systematic Review

E Anastasopoulou, E Dousis - International Journal of Caring …, 2022 - researchgate.net
Introduction: Providing care for children in the end of life entails special challenges and
exceptional requirements for all health professionals involved. Aim: The aim of the study is to …