Patient participation in shared decision‐making in palliative care–an integrative review

L Kuosmanen, M Hupli, S Ahtiluoto… - Journal of clinical …, 2021 - Wiley Online Library
Background Shared decision‐making is a process where the decisions regarding patients'
care are done in collaboration with the patient, the patient's family and a healthcare …

[HTML][HTML] Development of patient-centred care in acute hospital settings: a meta-narrative review

C Janerka, GD Leslie, FJ Gill - International Journal of Nursing Studies, 2023 - Elsevier
Background Patient-centred care is widely recognised as a core aspect of quality health
care and has been integrated into policy internationally. There remains a disconnect …

Description of patient reported experience measures (PREMs) for hospitalised patients with palliative care needs and their families, and how these map to noted areas …

C Virdun, M Garcia, JL Phillips… - Palliative Medicine, 2023 - journals.sagepub.com
Background: The global need for focused improvements in palliative care within the acute
hospital setting is well noted. A large volume of evidence exists detailing what hospitalised …

Family members' participation in palliative inpatient care: An integrative review

J Saarinen, K Mishina… - … Journal of Caring …, 2023 - Wiley Online Library
Aim To analyse how family members participate in hospital inpatient palliative care, and how
their participation could be supported. Methods This review followed a methodology outlined …

Palliative and End-of-Life Care Service Models: to what extent are consumer perspectives considered?

B Rumbold, SM Aoun - Healthcare, 2021 - mdpi.com
This article presents evidence found in a search of national and international literature for
patient preferences concerning settings in which to receive palliative care and the …

Preferences of patients with palliative care needs and their families for engagement with service improvement work within the hospital setting: A qualitative study

C Virdun, T Luckett, K Lorenz, P Davidson… - Palliative …, 2022 - journals.sagepub.com
Background: There is growing recognition of the importance of involving patients and
families with lived experiences of illness in healthcare service quality improvement, research …

Key aspects of psychosocial needs in palliative care-a qualitative analysis within the setting of a palliative care unit in comparison with specialised palliative home …

C Michel, H Seipp, K Kuss, M Hach, A Kussin… - BMC Palliative Care, 2023 - Springer
Background The number of palliative care patients with complex needs is increasing in
developed countries. In addition to physical aspects and symptom control, psychosocial …

How safe do dying people feel at home? patients' perception of safety while receiving specialist community palliative care

AJ Pedrosa Carrasco, A Bezmenov… - American Journal of …, 2023 - journals.sagepub.com
Background There is a research gap regarding safety concerns of patients at the end of life.
The aim of this study was, therefore, to explore whether patients under specialist community …

[HTML][HTML] Generating key practice points that enable optimal palliative care in acute hospitals: Results from the OPAL project's mid-point meta-inference

C Virdun, T Luckett, PM Davidson, K Lorenz… - International Journal of …, 2021 - Elsevier
Background Internationally, the epidemiology of dying is changing with people dying at an
older age from an expected death and with complex health care needs. An increasing …

Participatory research with carers: A systematic review and narrative synthesis

B Bowness, C Henderson, SC Akhter Khan… - Health …, 2024 - Wiley Online Library
Introduction As patient and public involvement (PPI) in research has become increasingly
common, research‐based recommendations on its principles and impacts have been …