ERNICA consensus conference on the management of patients with esophageal atresia and tracheoesophageal fistula: follow-up and framework

C Dingemann, S Eaton, G Aksnes… - European Journal of …, 2020 - thieme-connect.com
Introduction Improvements in care of patients with esophageal atresia (EA) and
tracheoesophageal fistula (TEF) have shifted the focus from mortality to morbidity and quality …

[HTML][HTML] The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia–tracheoesophageal …

U Krishnan, MW Dumont, H Slater, BD Gold… - Nature Reviews …, 2023 - nature.com
Oesophageal atresia–tracheoesophageal fistula (EA-TEF) is a common congenital digestive
disease. Patients with EA-TEF face gastrointestinal, surgical, respiratory, otolaryngological …

ERNICA consensus conference on the management of patients with esophageal atresia and tracheoesophageal fistula: diagnostics, preoperative, operative, and …

C Dingemann, S Eaton, G Aksnes… - European Journal of …, 2020 - thieme-connect.com
Introduction Many aspects of the management of esophageal atresia (EA) and
tracheoesophageal fistula (TEF) are controversial and the evidence for decision making is …

[HTML][HTML] Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2–7 across 14 countries

International EA-QoL Group - Frontiers in Pediatrics, 2023 - frontiersin.org
Background Esophageal atresia (EA) is a rare congenital anomaly characterized by a
discontinuity of the esophagus. Following surgical repair, survival rates have improved …

[HTML][HTML] Systematic review of long term follow-up and transitional care in adolescents and adults with esophageal atresia-why is transitional care mandatory?

G Brooks, M Gazzaneo, M Bertozzi… - European Journal of …, 2023 - Springer
Purpose: to review recent literature concerning long-term health issues and transitional care
in esophageal atresia (EA) patients. PubMed, Scopus, Embase and Web of Science …

Generic health-related quality of life after repair of esophageal atresia and its determinants within a German–Swedish cohort

S Flieder, M Dellenmark-Blom, S Witt… - European Journal of …, 2019 - thieme-connect.com
Aim Despite advances of outcomes of esophageal atresia (EA), knowledge on patients'
health-related quality of life (HRQoL) is sparse. Due to the heterogeneity of EA, larger …

[HTML][HTML] Postoperative morbidity and health-related quality of life in children with delayed reconstruction of esophageal atresia: a nationwide Swedish study

M Dellenmark-Blom, S Örnö Ax, E Öst… - Orphanet Journal of …, 2022 - Springer
Abstract Background In 10–15% of children with esophageal atresia (EA) delayed
reconstruction of esophageal atresia (DREA) is necessary due to long-gap EA and/or …

Health-related quality of life in patients after repair of esophageal atresia: a review of current literature

M Dellenmark-Blom, J Quitmann… - European Journal of …, 2020 - thieme-connect.com
Patients born with esophageal atresia (EA) require advanced reconstructive surgery and risk
long-term digestive and respiratory morbidity. We describe the state of current literature on …

The esophageal-atresia-quality-of-life questionnaires: feasibility, validity and reliability in Sweden and Germany

M Dellenmark-Blom, J Dingemann, S Witt… - Journal of pediatric …, 2018 - journals.lww.com
Objectives: Esophageal atresia (EA) is a rare malformation characterized of discontinuity of
the esophagus, concurrent with or without a tracheoesophageal fistula (TEF). We report the …

[HTML][HTML] A protocol for neoWONDER: Neonatal whole population data linkage to improve long-term health and wellbeing of preterm and sick babies

E van Blankenstein, A Aveline, C Battersby - Plos one, 2024 - journals.plos.org
Introduction Early-life medical and surgical interventions in babies born preterm and/or with
surgical conditions influence later life health and educational outcomes. Obtaining long-term …