Providing care to people living with a chronic hematological malignancy: a qualitative evidence synthesis of informal carers' experiences

O Cormican, M Dowling - Seminars in Oncology Nursing, 2022 - Elsevier
Objective Chronic hematological malignancies such as multiple myeloma, chronic
lymphocytic leukemia (CLL), indolent B-cell lymphomas, and myelodysplastic syndromes …

Ambiguous loss in family caregivers of loved ones with cancer, a synthesis of qualitative studies

CR Weiss, C Baker, A Gillespie, J Jones - Journal of Cancer Survivorship, 2023 - Springer
Purpose The purpose of this synthesis of qualitative studies is to explore manifestations of
ambiguous loss within the lived experiences of family caregivers (FCG) of loved ones with …

“A lot to manage and still have some kind of a life”: How multiple myeloma impacts the function and quality‐of‐life of Black–White patient–caregiver dyads

LC Bates‐Fraser, J Mills, P Mihas… - Journal of the …, 2023 - Wiley Online Library
Background Multiple myeloma (MM) is an incurable debilitating blood cancer associated
with the lowest health related quality of life (HRQoL) of all cancers. With nearly 88% of adults …

[HTML][HTML] Patient perspectives of 'Watch and Wait'for chronic haematological cancers: Findings from a qualitative study

D McCaughan, E Roman, R Sheridan… - European journal of …, 2023 - Elsevier
Purpose Chronic blood cancers are incurable, and characterised by unpredictable, remitting-
relapsing pathways. Management often involves periods of observation prior to treatment (if …

[HTML][HTML] Caregivers of patients with hematological malignancies within home care: a phenomenological study

I Capodanno, M Rocchi, R Prandi, C Pedroni… - International Journal of …, 2020 - mdpi.com
The role of caregivers in homecare settings is relevant to the patient's wellbeing and quality
of life. This phenomenon is well described in the literature for the oncological setting but not …

Unmet supportive care needs and associated factors among Chinese discharged patients with esophageal cancer after esophagectomy: a cross-sectional study

JY Ren, J Di Zhong, J Yuan, JE Zhang, CZ Li… - European Journal of …, 2020 - Elsevier
Purpose After esophagectomy, patients experience a series of problems that severely affect
their quality of life. Understanding their unmet needs could help medical staff provide better …

Quality of life in caregivers of patients with multiple myeloma

MG Pereira, M Vilaça, M Pinheiro, G Ferreira… - Aging & Mental …, 2020 - Taylor & Francis
Objectives: This study aimed to assess the relationship between sociodemographic, clinical,
and psychological variables with quality of life (QoL) and the moderating role of caregivers' …

Multiple myeloma in people of working age: A systematic review and evidence synthesis of experiences of paid and unpaid work

L Forbat, T Sedgley, L Bellussi - European Journal of Cancer …, 2023 - Wiley Online Library
Introduction. This review sought to synthesise the qualitative evidence pertaining to the
experiences of myeloma patients and relatives of work, given the distinct symptom burden …

Specific challenges in end-of-life care for patients with hematological malignancies

C Gerlach, B Alt-Epping, K Oechsle - Current Opinion in …, 2019 - journals.lww.com
The patients' perspective needs to be involved in future research to examine whether the
connotation of 'palliative care'is a barrier for patients, families or healthcare professionals …

Communication between Caregivers of Adults with Cancer and Healthcare Professionals: a Review of Communication Experiences, Associated Factors, Outcomes …

Y Wang, CL Seplaki, SA Norton, ALM Williams… - Current Oncology …, 2024 - Springer
Factors at the caregiver (eg, demographic characteristics, information sources, caregiving
duration, health status), patient (eg, demographic and clinical characteristics), and HCP …