Systematic review of frequency of felt and enacted stigma in epilepsy and determining factors and attitudes toward persons living with epilepsy—Report from the …

CS Kwon, A Jacoby, A Ali, J Austin, GL Birbeck… - …, 2022 - Wiley Online Library
Objective To review the evidence of felt and enacted stigma and attitudes toward persons
living with epilepsy, and their determining factors. Methods Thirteen databases were …

[HTML][HTML] Parents'/caregivers' fears and concerns about their child's epilepsy: A scoping review

B Carter, G Cook, L Bray, A Collingwood, H Saron… - Plos one, 2022 - journals.plos.org
Background Childhood epilepsy is a serious and common neurological condition and can
have life-long consequences and its impact can pervade all aspects of family life. Whilst the …

[HTML][HTML] The Quality of Life of Children with Epilepsy and the Impact of the Disease on the Family Functioning

A Rozensztrauch, A Kołtuniuk - International journal of environmental …, 2022 - mdpi.com
Epilepsy is a neurological chronic disease, which negatively affects physical, psychological
and social functioning of children and their families. The main objective of this study was to …

Ketogenic diet: parental experiences and expectations

E Orr, R Whitney, N Nandeesha… - Journal of child …, 2024 - journals.sagepub.com
Background The ketogenic diet may be difficult for some patients and their families to
implement and can impact physical, emotional, and social well-being. Methods Through …

Stigma experienced by patients with epilepsy: A systematic review and meta-synthesis of qualitative studies

Y Shi, S Liu, J Wang, C Li, J Zhang - Epilepsy & Behavior, 2021 - Elsevier
Background Epilepsy, one of the most common and serious chronic neurological diseases,
is accompanied by a series of complex psychosocial problems. A number of qualitative …

Exploring the needs and challenges of parents and their children in childhood epilepsy care: a qualitative study

SW Wo, LC Ong, WY Low, PSM Lai - Epilepsy & Behavior, 2018 - Elsevier
Because of the nature of epilepsy, and the unpredictability of seizure recurrence, epilepsy
requires long-term treatment with medications. As a consequence, epilepsy has a negative …

[HTML][HTML] The experiences of caregivers of children with epilepsy: a meta-synthesis of qualitative research studies

Z Yu, Q Shao, K Hou, Y Wang, X Sun - Frontiers in Psychiatry, 2022 - frontiersin.org
Objective Epilepsy is one of the most common chronic neurological disorders in children.
The caregivers of these children bear heavy burden of care in the process of taking care of …

Perceived stigma and self-esteem for children with epilepsy

Y Şengül, F Kurudirek - Epilepsy Research, 2022 - Elsevier
Objective The study was conducted to determine the sense of stigma and self-esteem in
children with epilepsy. Methods The study has a descriptive-correlational design. The …

Impact of COVID-19 pandemic on caregivers of persons with epilepsy–A systematic review

J Wanigasinghe, CT Weeraratne, BN Dolapihilla… - Epilepsy & Behavior, 2023 - Elsevier
Purpose To describe the impact of COVID-19 pandemic on caregivers of persons with
epilepsy. Methods This systematic literature review was conducted according to the …

[HTML][HTML] How much do we know? assessing public knowledge, awareness, impact, and awareness guidelines for epilepsy: A systematic review

OP Musekwa, L Makhado… - The Open Public …, 2020 - openpublichealthjournal.com
Background: Epilepsy misconceptions are widespread; these influence the quality of life of
people living with epilepsy (50 million people worldwide) and their families. Objective: The …