A review of ancestrality and admixture in Latin America and the caribbean focusing on native American and African descendant populations

TC De Oliveira, R Secolin, I Lopes-Cendes - Frontiers in Genetics, 2023 - frontiersin.org
Genomics can reveal essential features about the demographic evolution of a population
that may not be apparent from historical elements. In recent years, there has been a …

Including digital sequence data in the Nagoya Protocol can promote data sharing

J Ambler, PK Dearden, P Wilcox, M Hudson… - Trends in …, 2021 - cell.com
The Nagoya Protocol (NP), a legal framework under the Convention on Biological Diversity
(CBD), formalises fair and equitable sharing of benefits arising from biological diversity. It …

Using indigenous standards to implement the CARE principles: Setting expectations through tribal research codes

SR Carroll, I Garba, R Plevel, D Small-Rodriguez… - Frontiers in …, 2022 - frontiersin.org
Biomedical data are now organized in large-scale databases allowing researchers
worldwide to access and utilize the data for new projects. As new technologies generate …

Wastewater monitoring raises privacy and ethical considerations

D Jacobs, T McDaniel, A Varsani… - … on Technology and …, 2021 - ieeexplore.ieee.org
Analysis of municipal wastewater, or sewage for public health applications is a rapidly
expanding field aimed at understanding emerging epidemiological trends, including human …

Generations of genomes: advances in paleogenomics technology and engagement for Indigenous people of the Americas

KS Tsosie, RL Begay, K Fox, G Nanibaa'A - Current opinion in genetics & …, 2020 - Elsevier
For decades, scientists have collected genomic information from Indigenous peoples and
their ancestors with the goal of elucidating human migration events, understanding ancestral …

Barriers and considerations for diagnosing rare diseases in indigenous populations

CS D'Angelo, A Hermes, CR McMaster… - Frontiers in …, 2020 - frontiersin.org
Advances in omics and specifically genomic technologies are increasingly transforming rare
disease diagnosis. However, the benefits of these advances are disproportionately …

[PDF][PDF] Letter to the editor: Indigenous data sovereignties and data sharing in biological anthropology

KS Tsosie, JM Yracheta, J Kolopenuk… - American Journal of …, 2020 - researchgate.net
In their commentary on data sharing in biological anthropology, Turner and Mulligan (2019)
lay out guiding principles and best practices resulting from the American Association of …

[HTML][HTML] Issues with variability in electronic health record data about race and ethnicity: descriptive analysis of the national COVID cohort collaborative data enclave

L Cook, J Espinoza, NG Weiskopf… - JMIR medical …, 2022 - medinform.jmir.org
Background: The adverse impact of COVID-19 on marginalized and under-resourced
communities of color has highlighted the need for accurate, comprehensive race and …

A systematic literature review of Native American and Pacific Islanders' perspectives on health data privacy in the United States

R Taitingfong, CS Bloss, C Triplett… - Journal of the …, 2020 - academic.oup.com
Background Privacy-related concerns can prevent equitable participation in health research
by US Indigenous communities. However, studies focused on these communities' views …

Benefit sharing: Why inclusive provenance metadata matter

J Golan, KL Riddle, M Hudson, J Anderson… - Frontiers in …, 2022 - frontiersin.org
Fair and equitable benefit sharing of genetic resources is an expectation of the Nagoya
Protocol. Although the Nagoya Protocol does not yet formally apply to Digital Sequence …