Palliative care and Parkinson's disease: managing the chronic-palliative interface

M Lanoix - Chronic Illness, 2009 - journals.sagepub.com
The increasing numbers of individuals needing palliative services and changing the nature
of these services bring about new challenges for the delivery and accessibility of timely and …

Advanced multiple sclerosis and the psychosocial impact on families

C Bowen, A MacLehose, JG Beaumont - Psychology and Health, 2011 - Taylor & Francis
This study explores family relationships and support needs when adapting to a relative's
advanced-multiple sclerosis (MS) around transition into care. A multi-site qualitative study of …

A palliative approach to neurological care: a literature review

TE Gofton, MS Jog, V Schulz - Canadian journal of neurological …, 2009 - cambridge.org
This review assesses the current opinion towards early palliative care in neurology and
discusses the existing evidence base. A comprehensive literature search resulted in 714 …

Neurology clinicians' views on palliative care communication: “How do you frame this?”

A Zehm, AM Hazeltine, JA Greer, L Traeger… - Neurology: Clinical …, 2020 - AAN Enterprises
Background The communication process of preparing patients and families facing
progressive neurodegenerative diseases for future illness has not been empirically …

Allied health professional's views on palliative care for people with advanced Parkinson's disease

M Waldron, WG Kernohan, F Hasson… - … journal of therapy …, 2011 - magonlinelibrary.com
Mary Waldron, W George Kernohan, Felicity Hasson, Susan Foster, Barbara Cochrane,
Cathy Payne Aims: Allied health professionals (AHPs) have a key role in the delivery of …

“We are not the person we will be when these things happen:” Reflections on personhood from an ethnography of neuropalliative care

M Sofronas, FA Carnevale, ME Macdonald… - Nursing …, 2024 - Wiley Online Library
Neuropalliative care developed to address the needs of patients living with life‐limiting
neurologic disease. One critical consideration is that disease‐related changes to cognition …

What do social workers think about the palliative care needs of people with Parkinson's disease?

M Waldron, WG Kernohan, F Hasson… - British Journal of …, 2013 - academic.oup.com
Social workers are key professionals in assessing social care need and providing support.
However, needs in the palliative care stage of chronic illness are not always well managed …

Livskvalitet hos pasienter med amyotrofisk lateral sklerose

A Leirvik, M Liverød, T Holmøy - Tidsskrift for Den norske legeforening, 2006 - tidsskriftet.no
Bakgrunn. Amyotrofisk lateral sklerose (ALS) medfører tap av viktige kroppsfunksjoner og
stort behov for hjelp og forbindes med svært lav livskvalitet. Vi har undersøkt egenopplevd …

[PDF][PDF] The role of palliative care in adult moderate to severe traumatic brain injury

H Elhusseiny, K Elzamly, K Leon… - Palliat Med …, 2018 - scholar.archive.org
Moderate to severe traumatic brain injury is one of the most common causes of death and
major disability among adult patients. The change of quality of life that patients experience …

Manuscript# 4:“We are not the person we will be when these things happen:” Reflections on personhood from an ethnography of neuropalliative care

ME Macdonald - An Ethnography of Neuropalliative Care, 2022 - search.proquest.com
Background: Among the many challenges that patients face with life-limiting neurologic
disease, one important consideration is how changes to cognition, communication, and …