Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research
KE Steinhauser, EC Clipp, JC Hays… - Palliative …, 2006 - journals.sagepub.com
Background: In order to improve the state of science in palliative care, we must increase our
ability to document the real-time experience of patients and families as they traverse the end …
ability to document the real-time experience of patients and families as they traverse the end …
The sociology of dying, death and bereavement
C Exley - Sociology of Health and Illness, 2004 - nrl.northumbria.ac.uk
Cobb, M.,'The Dying Soul: Spiritual Care at the End of Life'(Buckingham: Open University
Press, 2001£ 16.99 (pbk) vii+ 145pp) Currer, C.,'Responding to Grief: Dying, Bereavement …
Press, 2001£ 16.99 (pbk) vii+ 145pp) Currer, C.,'Responding to Grief: Dying, Bereavement …
The role and significance of nurses in managing transitions to palliative care: a qualitative study
Objectives Nurses are generally present, and often influential, in supporting patient and
family acceptance of medical futility and in assisting doctors in negotiating referral to …
family acceptance of medical futility and in assisting doctors in negotiating referral to …
A narrative review of the published ethical debates in palliative care research and an assessment of their adequacy to inform research governance
S Duke, H Bennett - Palliative Medicine, 2010 - journals.sagepub.com
The quality of research, and the resulting quality of evidence available to guide palliative
care, is dependent on the ethical decisions underpinning its design, conduct and report …
care, is dependent on the ethical decisions underpinning its design, conduct and report …
Interviews on end-of-life care with older people: reflections on six european studies
S Pleschberger, JE Seymour, S Payne… - Qualitative Health …, 2011 - journals.sagepub.com
Qualitative research provides important insights into the experiences and perspectives of
older people on end-of-life issues, but such research is methodologically and ethically …
older people on end-of-life issues, but such research is methodologically and ethically …
Recruiting into palliative care trials: lessons learnt from a feasibility study
AM Cook, IG Finlay, RJ Butler-Keating - Palliative medicine, 2002 - journals.sagepub.com
Oral dryness (xerostomia) is a common problem to cancer patients1 and although there are
a number of treatments available few have been studied in the palliative patient by …
a number of treatments available few have been studied in the palliative patient by …
Ethical and methodological issues in palliative care studies: The experiences of a research group
J Seymour, S Payne, D Reid… - Journal of Research …, 2005 - journals.sagepub.com
This paper reports on the experiences of a nursing-led research group,'The Palliative and
End of Life Care Research Group', within the School of Nursing and Midwifery at the …
End of Life Care Research Group', within the School of Nursing and Midwifery at the …
Ethical considerations in researching user views
J Seymour, J Skilbeck - European Journal of Cancer Care, 2002 - Wiley Online Library
Ethical considerations in researching user views Researching user views has become a
central plank of UK cancer and palliative care policy, not least because it is recognized that …
central plank of UK cancer and palliative care policy, not least because it is recognized that …
Ethical considerations and barriers to research in surgical palliative care
RS Krouse, AM Easson, P Angelos - Journal of the American …, 2003 - journals.lww.com
There are many distinctive ethical characteristics, dilemmas, and potential barriers for
surgeons involved in palliative care research. Although some of these issues might not be …
surgeons involved in palliative care research. Although some of these issues might not be …
Clinical research for surgeons in palliative care: challenges and opportunities
AM Easson, FK Lee, K Brasel… - Journal of the American …, 2003 - journals.lww.com
Symptom management and palliative medicine have gained growing interest among
physicians and other health care providers. One reason might be the profound shift in …
physicians and other health care providers. One reason might be the profound shift in …