Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research

KE Steinhauser, EC Clipp, JC Hays… - Palliative …, 2006 - journals.sagepub.com
Background: In order to improve the state of science in palliative care, we must increase our
ability to document the real-time experience of patients and families as they traverse the end …

The sociology of dying, death and bereavement

C Exley - Sociology of Health and Illness, 2004 - nrl.northumbria.ac.uk
Cobb, M.,'The Dying Soul: Spiritual Care at the End of Life'(Buckingham: Open University
Press, 2001£ 16.99 (pbk) vii+ 145pp) Currer, C.,'Responding to Grief: Dying, Bereavement …

The role and significance of nurses in managing transitions to palliative care: a qualitative study

E Kirby, A Broom, P Good - BMJ open, 2014 - bmjopen.bmj.com
Objectives Nurses are generally present, and often influential, in supporting patient and
family acceptance of medical futility and in assisting doctors in negotiating referral to …

A narrative review of the published ethical debates in palliative care research and an assessment of their adequacy to inform research governance

S Duke, H Bennett - Palliative Medicine, 2010 - journals.sagepub.com
The quality of research, and the resulting quality of evidence available to guide palliative
care, is dependent on the ethical decisions underpinning its design, conduct and report …

Interviews on end-of-life care with older people: reflections on six european studies

S Pleschberger, JE Seymour, S Payne… - Qualitative Health …, 2011 - journals.sagepub.com
Qualitative research provides important insights into the experiences and perspectives of
older people on end-of-life issues, but such research is methodologically and ethically …

Recruiting into palliative care trials: lessons learnt from a feasibility study

AM Cook, IG Finlay, RJ Butler-Keating - Palliative medicine, 2002 - journals.sagepub.com
Oral dryness (xerostomia) is a common problem to cancer patients1 and although there are
a number of treatments available few have been studied in the palliative patient by …

Ethical and methodological issues in palliative care studies: The experiences of a research group

J Seymour, S Payne, D Reid… - Journal of Research …, 2005 - journals.sagepub.com
This paper reports on the experiences of a nursing-led research group,'The Palliative and
End of Life Care Research Group', within the School of Nursing and Midwifery at the …

Ethical considerations in researching user views

J Seymour, J Skilbeck - European Journal of Cancer Care, 2002 - Wiley Online Library
Ethical considerations in researching user views Researching user views has become a
central plank of UK cancer and palliative care policy, not least because it is recognized that …

Ethical considerations and barriers to research in surgical palliative care

RS Krouse, AM Easson, P Angelos - Journal of the American …, 2003 - journals.lww.com
There are many distinctive ethical characteristics, dilemmas, and potential barriers for
surgeons involved in palliative care research. Although some of these issues might not be …

Clinical research for surgeons in palliative care: challenges and opportunities

AM Easson, FK Lee, K Brasel… - Journal of the American …, 2003 - journals.lww.com
Symptom management and palliative medicine have gained growing interest among
physicians and other health care providers. One reason might be the profound shift in …