[HTML][HTML] Supportive care of neurodegenerative patients

AE Armitage, E Fonkem - Frontiers in Oncology, 2023 - frontiersin.org
Neurodegenerative illnesses are notorious for paucity of treatments and relentless clinical
progression. Illness may follow a relatively acute presentation, as is seen with primary brain …

Prognostic awareness and prognostic information preferences among advanced cancer patients in Kenya

H Elias, S Ozdemir, J Bairavi, E Achieng… - African Journal of …, 2024 - journals.co.za
Background Cancer is the third leading cause of death in Kenya. Yet, little is known about
prognostic awareness and preferences for prognostic information. Aim To assess the …

Illness Understanding and Religiousness in Patients with Recurrent Glioblastoma

JT Fortunato, LE Walsh, LC Polacek… - Neuro-Oncology …, 2024 - academic.oup.com
Background Patients with glioblastoma (GBM) often have inaccurate perceptions of
prognosis. Strong religious beliefs have been associated with limited illness understanding …

Prognostic disclosure and quality of life in palliative care: a systematic review

S Wattanapisit, R Wagland, K Hunt - BMJ supportive & palliative …, 2021 - spcare.bmj.com
Introduction Prognostic disclosure is an important component of communication in palliative
care. Disclosing information on poor prognosis may affect quality of life (QoL) of palliative …

Palliative Care in Neuro-Oncology

JM Besbris, LP Taylor - Seminars in Neurology, 2024 - thieme-connect.com
Historically, the practice of neurology as an independent subspecialty from internal medicine
began in Europe and the United States in the 1930s. The American Academy of Neurology …

[HTML][HTML] Bereavement care for family caregivers of neuro-oncology patients

SE Morris, TS Sannes - Annals of Palliative Medicine, 2021 - apm.amegroups.org
Bereavement care is best conceptualized as a preventive model of care. It is an integral
component of palliative care where support for the family begins at the time of diagnosis and …

Using cognition to predict the ability to understand medical treatment in brain and metastatic cancer

A Gerstenecker, M Gammon, D Marotta… - Psycho …, 2020 - Wiley Online Library
Objective To determine if cognition can be used to identify persons with cancer at high risk
for the impaired ability to understand treatment decisions. Methods The association between …

Dissonance in views between parents and clinicians of children with serious illness: How can we bridge the gap?

NT Katz, JL Hynson, L Gillam - Journal of Paediatrics and Child …, 2021 - Wiley Online Library
Parents of children with serious illness must find a tolerable way of living each day, while
caring for their child and making decisions about their treatments. Sometimes clinicians …

Understanding hospice patients' beliefs about their life expectancy: a qualitative interview study

JM Taber, CL Stacey… - American Journal of …, 2021 - journals.sagepub.com
Background: Patients with advanced disease often overestimate their life expectancy, which
potentially impacts decision making. Objective: To examine the nature and source of …

Top ten tips palliative care clinicians should know when caring for patients with brain cancer

BM Kluger, DE Ney, SJ Bagley, N Mohile… - Journal of palliative …, 2020 - liebertpub.com
The diagnosis of an aggressive, primary brain tumor is life altering for those affected and too
often portends a poor prognosis. Despite decades of research, neither a cure nor even a …