[HTML][HTML] Best practice framework for Patient and Public Involvement (PPI) in collaborative data analysis of qualitative mental health research: methodology …

H Jennings, M Slade, P Bates, E Munday, R Toney - BMC psychiatry, 2018 - Springer
Abstract Background Patient and Public Involvement (PPI) in mental health research is
increasing, especially in early (pre-funding) stages. PPI is less consistent in later stages …

[HTML][HTML] The experience of patient partners in research: a qualitative systematic review and thematic synthesis

J Lauzon-Schnittka, S Audette-Chapdelaine… - Research involvement …, 2022 - Springer
Context Patient engagement in research consists in involving patients as partners across the
research cycle. This practice has quickly become an international standard, with funding …

[HTML][HTML] The impact of public involvement in health research: what are we measuring? Why are we measuring it? Should we stop measuring it?

J Russell, N Fudge, T Greenhalgh - Research involvement and …, 2020 - Springer
As public involvement in the design, conduct and dissemination of health research has
become an expected norm and firmly enshrined in policy, interest in measuring its impact …

What constitutes meaningful engagement for patients and families as partners on research teams?

A Black, K Strain, C Wallsworth… - Journal of health …, 2018 - journals.sagepub.com
Objective There is growing emphasis on health care organizations to ensure that lay people
are meaningfully engaged as partners on research teams. Our aim was to explore the …

[HTML][HTML] Learning as an outcome of involvement in research: what are the implications for practice, reporting and evaluation?

K Staley, D Barron - Research involvement and engagement, 2019 - Springer
Public involvement in research has evolved over the last two decades in a culture
dominated by the principles of evidence-based medicine. It is therefore unsurprising that …

[HTML][HTML] Development and pre-testing of the Patient Engagement In Research Scale (PEIRS) to assess the quality of engagement from a patient perspective

CB Hamilton, AM Hoens, S McQuitty, AM McKinnon… - PLoS …, 2018 - journals.plos.org
Objectives To develop and examine the content and face validity of the Patient Engagement
In Research Scale (PEIRS) for assessing the quality of patient engagement in research …

[HTML][HTML] A rapid realist review of patient engagement in patient-oriented research and health care system impacts: part one

E Zibrowski, T Carr, S McDonald, H Thiessen… - Research Involvement …, 2021 - Springer
Background Patient-oriented research affords individuals with opportunities to genuinely
contribute to health care research as members of research teams. While checklists and …

Patient and carer involvement in palliative care research: an integrative qualitative evidence synthesis review

E Chambers, C Gardiner, J Thompson… - Palliative …, 2019 - journals.sagepub.com
Background: Patient/carer involvement in palliative care research has been reported as
complex, difficult and less advanced compared to other areas of health and social care …

Understanding the motivations of patients: a co‐designed project to understand the factors behind patient engagement

TL McCarron, T Noseworthy, K Moffat… - Health …, 2019 - Wiley Online Library
Background Large‐scale transformation depends on effective engagement of diverse
stakeholders. With the evolution of the role of the 'patient partner'in health‐care decision …

What motivates patients and caregivers to engage in health research and how engagement affects their lives: qualitative survey findings

R Hemphill, LP Forsythe, AL Heckert… - Health …, 2020 - Wiley Online Library
Background US research organizations increasingly are supporting patient and stakeholder
engagement in health research with a goal of producing more useful, relevant and patient …