Dyadic interventions for cancer survivors and caregivers: state of the science and new directions

H Badr, J Bakhshaie, K Chhabria - Seminars in oncology nursing, 2019 - Elsevier
Objectives To describe caregiving and relationship challenges in cancer and the state of the
science of dyadic interventions that target survivors and caregivers. Data Sources Narrative …

Treatment decision-making in chronic diseases: What are the family members' roles, needs and attitudes? A systematic review

K Lamore, L Montalescot, A Untas - Patient education and counseling, 2017 - Elsevier
Objective This systematic review aims to examine the roles of family members (FMs) in
treatment decision-making for adult patients without cognitive or psychiatric disorders …

[HTML][HTML] Knowledge of and beliefs about palliative care in a nationally-representative US sample

JM Taber, EM Ellis, M Reblin, L Ellington, RA Ferrer - PloS one, 2019 - journals.plos.org
Palliative care aims to improve quality of life for people with serious illness and their families.
One potential barrier to palliative care uptake is inaccurate knowledge and/or negative …

Exploring cancer patients', caregivers', and clinicians' utilisation and experiences of telehealth services during COVID-19: a qualitative study

SJ Smith, AB Smith, W Kennett, SK Vinod - Patient Education and …, 2022 - Elsevier
Objectives The COVID-19 pandemic has significantly impacted oncology. With pandemic
restrictions limiting close contact between individuals, telehealth (the use of …

[HTML][HTML] How family caregivers of persons with advanced cancer assist with upstream healthcare decision-making: a qualitative study

JN Dionne-Odom, D Ejem, R Wells, AE Barnato… - PLoS …, 2019 - journals.plos.org
Aims Numerous healthcare decisions are faced by persons with advanced cancer from
diagnosis to end-of-life. The family caregiver role in these decisions has focused on being a …

Who decides: me or we? Family involvement in medical decision making in eastern and western countries

DL Alden, J Friend, PY Lee, YK Lee… - Medical Decision …, 2018 - journals.sagepub.com
Background. Research suggests that desired family involvement (FI) in medical decision
making may depend on cultural values. Unfortunately, the field lacks cross-cultural studies …

[HTML][HTML] Ethical challenges in family caregivers of patients with advanced cancer–a qualitative study

A Ullrich, M Theochari, C Bergelt, G Marx, K Woellert… - BMC Palliative Care, 2020 - Springer
Background Caring for patients with advanced or terminal diseases can confront family
caregivers (FC) with ethical challenges. The present study aims at tracing paths connected …

[HTML][HTML] The second patient? Family members of cancer patients and their role in end-of-life decision making

K Laryionava, TA Pfeil, M Dietrich, S Reiter-Theil… - BMC palliative …, 2018 - Springer
Background Family members are important companions of severely ill patients with cancer.
However, studies about the desirability and difficulties of integrating relatives in the decision …

[HTML][HTML] Experiences of bereaved family caregivers with shared decision making in palliative cancer treatment: a qualitative interview study

SPC van Oosterhout, DJM Ermers… - BMC palliative …, 2021 - Springer
Background Patients with incurable cancer face complex medical decisions. Their family
caregivers play a prominent role in shared decision making processes, but we lack insights …

Potential unintended consequences of recent shared decision making policy initiatives

J Blumenthal-Barby, DJ Opel, NW Dickert… - Health …, 2019 - healthaffairs.org
Shared decision making (SDM)—when clinicians and patients make medical decisions
together—is moving swiftly from an ethical ideal toward widespread clinical implementation …