Dyadic interventions for cancer survivors and caregivers: state of the science and new directions
H Badr, J Bakhshaie, K Chhabria - Seminars in oncology nursing, 2019 - Elsevier
Objectives To describe caregiving and relationship challenges in cancer and the state of the
science of dyadic interventions that target survivors and caregivers. Data Sources Narrative …
science of dyadic interventions that target survivors and caregivers. Data Sources Narrative …
Treatment decision-making in chronic diseases: What are the family members' roles, needs and attitudes? A systematic review
K Lamore, L Montalescot, A Untas - Patient education and counseling, 2017 - Elsevier
Objective This systematic review aims to examine the roles of family members (FMs) in
treatment decision-making for adult patients without cognitive or psychiatric disorders …
treatment decision-making for adult patients without cognitive or psychiatric disorders …
[HTML][HTML] Knowledge of and beliefs about palliative care in a nationally-representative US sample
Palliative care aims to improve quality of life for people with serious illness and their families.
One potential barrier to palliative care uptake is inaccurate knowledge and/or negative …
One potential barrier to palliative care uptake is inaccurate knowledge and/or negative …
Exploring cancer patients', caregivers', and clinicians' utilisation and experiences of telehealth services during COVID-19: a qualitative study
Objectives The COVID-19 pandemic has significantly impacted oncology. With pandemic
restrictions limiting close contact between individuals, telehealth (the use of …
restrictions limiting close contact between individuals, telehealth (the use of …
[HTML][HTML] How family caregivers of persons with advanced cancer assist with upstream healthcare decision-making: a qualitative study
Aims Numerous healthcare decisions are faced by persons with advanced cancer from
diagnosis to end-of-life. The family caregiver role in these decisions has focused on being a …
diagnosis to end-of-life. The family caregiver role in these decisions has focused on being a …
Who decides: me or we? Family involvement in medical decision making in eastern and western countries
Background. Research suggests that desired family involvement (FI) in medical decision
making may depend on cultural values. Unfortunately, the field lacks cross-cultural studies …
making may depend on cultural values. Unfortunately, the field lacks cross-cultural studies …
[HTML][HTML] Ethical challenges in family caregivers of patients with advanced cancer–a qualitative study
A Ullrich, M Theochari, C Bergelt, G Marx, K Woellert… - BMC Palliative Care, 2020 - Springer
Background Caring for patients with advanced or terminal diseases can confront family
caregivers (FC) with ethical challenges. The present study aims at tracing paths connected …
caregivers (FC) with ethical challenges. The present study aims at tracing paths connected …
[HTML][HTML] The second patient? Family members of cancer patients and their role in end-of-life decision making
K Laryionava, TA Pfeil, M Dietrich, S Reiter-Theil… - BMC palliative …, 2018 - Springer
Background Family members are important companions of severely ill patients with cancer.
However, studies about the desirability and difficulties of integrating relatives in the decision …
However, studies about the desirability and difficulties of integrating relatives in the decision …
[HTML][HTML] Experiences of bereaved family caregivers with shared decision making in palliative cancer treatment: a qualitative interview study
SPC van Oosterhout, DJM Ermers… - BMC palliative …, 2021 - Springer
Background Patients with incurable cancer face complex medical decisions. Their family
caregivers play a prominent role in shared decision making processes, but we lack insights …
caregivers play a prominent role in shared decision making processes, but we lack insights …
Potential unintended consequences of recent shared decision making policy initiatives
J Blumenthal-Barby, DJ Opel, NW Dickert… - Health …, 2019 - healthaffairs.org
Shared decision making (SDM)—when clinicians and patients make medical decisions
together—is moving swiftly from an ethical ideal toward widespread clinical implementation …
together—is moving swiftly from an ethical ideal toward widespread clinical implementation …