Genetic counseling: A developing area of interest for psychologists.

S Shiloh - Professional Psychology: Research and Practice, 1996 - psycnet.apa.org
This article presents genetic counseling as a challenging field for psychologists.
Developments in the field affect individual and public conceptions of the basic issues of …

Psychosocial issues following a positive result of genetic testing for BRCA1 and BRCA2 mutations: findings from a focus group and a needs-assessment survey

L Prospero, M Seminsky, J Honeyford, B Doan… - Cmaj, 2001 - Can Med Assoc
Background: About 5% of cases of breast cancer and 10% of cases of ovarian cancer are
due to an inherited predisposition. Since 1994 it has been possible to test some people at …

The utilization of genetic counselors by patient support groups

S Roulston, K Raraigh, A Malinowski… - Journal of Genetic …, 2023 - Wiley Online Library
The theoretical benefits of collaboration between patient support groups and genetic
counselors have been discussed in the literature. However, no study has quantified the rate …

An assessment of the needs of mutual-help groups

GJ Meissen, DF Gleason… - American Journal of …, 1991 - search.proquest.com
American Journal of Community PsycholoVgy, VoL 19, No. 3, 1991 An Assessment of the
Needs of Mutual-Help Groups1 Gregory J. Meissen, 2 David F. Gleason, and Melody G …

Effects of a genetic counseling model on mothers of children with down syndrome: a Brazilian pilot study

MRD Micheletto, NI Valerio, AC Fett-Conte - Journal of genetic counseling, 2013 - Springer
Down syndrome occurs in approximately 1: 600 live births. Genetic counseling is indicated
for these families and may be beneficial for adaptation to the challenges that accompany by …

Research studies in applied human genetics: a quantitative analysis and critical review of recent literature

A Lippman - American journal of medical genetics, 1991 - Wiley Online Library
To determine the extent to which speculations about the social, legal, and ethical
implications of genetic counseling, screening, and prenatal diagnosis are being studied …

Interest in a support group among individuals tested for a BRCA1 gene mutation

HA Hamann, RT Croyle, KR Smith… - Journal of …, 2000 - Taylor & Francis
This article explores interest in a support group among 218 individuals tested for a mutation
in BRCA1, a breast and ovarian cancer susceptibility gene. When queried 4 to 7 months …

Emerging quality improvement measures in genetic counseling

DH Lea - Journal of Genetic Counseling, 1996 - Wiley Online Library
The need to establish guidelines for total quality management in genetic counseling is now
recognized as new genetic technologies are being introduced into genetics services and …

Support groups for patients with genetic disorders and their families

JO Weiss - Pediatric Clinics of North America, 1992 - Elsevier
Professionals working within pediatric clinics have a challenge to broaden their clinical
focus on children with genetic disorders by actively collaborating with genetic support …

Cornelia De Lange syndrome: parental preferences regarding the provision of medical information

DAR Hinkson, E Atenafu, SJ Kennedy… - American Journal of …, 2006 - Wiley Online Library
We surveyed 57 caregivers of children with Cornelia de Lange syndrome (CdLS) using a
self‐report questionnaire designed to elicit their experiences with receiving information …