[HTML][HTML] An under-represented and underserved population in trials: methodological, structural, and systemic barriers to the inclusion of adults lacking capacity to …

V Shepherd - Trials, 2020 - Springer
Background There is increasing international recognition that populations included in trials
should adequately represent the population treated in clinical practice; however, adults who …

Advances and challenges in conducting ethical trials involving populations lacking capacity to consent: a decade in review

V Shepherd - Contemporary Clinical Trials, 2020 - Elsevier
Informed consent is an essential requirement prior to clinical trial participation, however
some 'vulnerable'groups, such as people with cognitive impairments and those in medical …

[HTML][HTML] Complex and alternate consent pathways in clinical trials: methodological and ethical challenges encountered by underserved groups and a call to action

AM Russell, V Shepherd, K Woolfall, B Young, K Gillies… - Trials, 2023 - Springer
Background Informed consent is considered a fundamental requirement for participation in
trials, yet obtaining consent is challenging in a number of populations and settings. This may …

Cancer treatment decisions for people living with dementia: Experiences of family carers, a qualitative interview study

C Hynes, VJ Hodges, L Wyld, C Mitchell - Health Expectations, 2022 - Wiley Online Library
Background As the UK population ages, the prevalence of both dementia and cancer will
increase. Family carers of people with dementia who are subsequently diagnosed with …

Constructing authentic decisions: proxy decision making for research involving adults who lack capacity to consent

V Shepherd, M Sheehan, K Hood, R Griffith… - Journal of medical …, 2021 - jme.bmj.com
Research involving adults who lack capacity to consent relies on proxy (or surrogate)
decision making. Proxy decisions about participation are ethically complex, with a disparity …

[HTML][HTML] Planning ahead for research participation: survey of public and professional stakeholders' views about the acceptability and feasibility of advance research …

V Shepherd, K Hood, F Wood - BMC Medical Ethics, 2023 - Springer
Background Anticipatory planning in the UK focuses on supporting people who anticipate
periods of impaired capacity to express their wishes about future care through processes …

老年痴呆病人代理决策应用研究进展.

朱春乐, 张婷, 兰岚, 黄玉桃, 张玉婷… - Chinese Nursing …, 2023 - search.ebscohost.com
老年痴呆病人代理决策应用研究进展 Page 1 CHINESE NURSING RESEARCH April,2023 Vol.
37 No. 7 老年痴呆病人代理决策应用研究进展 朱春乐1,张婷1*,兰岚1,黄玉桃2,张玉婷1,周敏1,刘君 …

[HTML][HTML] Decision-making by and for adults with impaired capacity: The potential of the Dutch levenstestament

HN Stelma-Roorda, VI Eichelsheim - International Journal of Law and …, 2023 - Elsevier
Anticipatory decision-making instruments–continuing powers of attorney and advance
directives–are increasingly seen as a promising way forward to enhance the autonomy of …

How nurses can support the inclusion in research of older people who lack capacity to consent

V Shepherd - Nursing Older People, 2021 - journals.rcni.com
Research is important because it underpins evidence-based care. However, people who
lack capacity to consent are often excluded from research, due partly to ethical concerns and …

Dementia inclusivity: Using the experiences of people with dementia and care partners to inform a forum intended to address community attitudes

ST Read - 2022 - espace.curtin.edu.au
The number of people diagnosed with dementia is increasing globally and there is a
necessity to find measures to support their quality of life. This mixed methods research study …