Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: Current practices and research priorities

S Lanzkron, GS Sawicki, KL Hassell… - Journal of clinical and …, 2018 - cambridge.org
IntroductionA growing population of adults living with severe, chronic childhood-onset health
conditions has created a need for specialized health care delivered by providers who have …

Socioeconomic determinants of respiratory health in patients with cystic fibrosis: implications for treatment strategies

GR Oates, MS Schechter - Expert review of respiratory medicine, 2022 - Taylor & Francis
Introduction Great variation exists in the progression and outcomes of cystic fibrosis (CF)
lung disease, due to both genetic and environmental influences. Social determinants …

Social inequities and cystic fibrosis outcomes: we can do better

GR Oates, MS Schechter - Annals of the American Thoracic Society, 2021 - atsjournals.org
11 Somayaji R, Russell R, Cogen JD, Goss CH, Nick SE, Saavedra MT, et al. Oral
azithromycin use and the recovery of lung function from pulmonary exacerbations treated …

Patterns of health insurance coverage and lung disease progression in adolescents and young adults with cystic fibrosis

D Tumin, EM Crowley, SS Li, W Wooten… - Annals of the …, 2021 - atsjournals.org
Rationale: Health insurance coverage has been implicated as a socioeconomic factor
affecting clinical outcomes in patients with cystic fibrosis (CF), but evidence for this is mixed …

Short-and long-term health consequences of gaps in health insurance coverage among young adults

G Horne, A Gautam, D Tumin - Population Health Management, 2022 - liebertpub.com
In cross-sectional data, gaps in health insurance coverage are associated with worse health
and lower utilization of preventive services. The authors investigated if these associations …

Implications of pediatric palliative consultation for intensive care unit stay

ZM Rossfeld, R Miller, D Tumin, JD Tobias… - Journal of palliative …, 2019 - liebertpub.com
Background: The impact of specialty pediatric palliative care (PPC) on intensive care unit
(ICU) length of stay for children is unclear. Objective: To estimate the impact of PPC …

Aiming to Improve Equity in Pulmonary Health: Cystic Fibrosis

GR Oates, MS Schechter - Clinics in Chest Medicine, 2023 - chestmed.theclinics.com
Cystic fibrosis (CF), the second most common lifeshortening autosomal recessive genetic
disorder in the United States, is characterized by abnormal secretions in multiple organ …

Preventive service utilization among adults with cystic fibrosis covered by private insurance is comparable to the general population

S Malhotra, JM Hyer, D Dalmacy, D Hayes Jr… - Journal of Cystic …, 2024 - Elsevier
Background As the life expectancy of the cystic fibrosis (CF) population is lengthening with
modulator therapies, diligent age-appropriate screening and preventive care are …

Understanding treatment adherence in cystic fibrosis: Challenges and opportunities

EF Muther, JL Butcher, KA Riekert - Cystic Fibrosis: A Multi-Organ System …, 2020 - Springer
Significant advancements in the treatment of cystic fibrosis (CF) have led to drastically
improved medical outcomes for those living with this illness. While these improvements have …

Assessment of hospitalization rates, factors associated with hospitalization and in-patient mortality in pediatric patients with cystic fibrosis

D Dongarwar, BY Garcia, K Miller, HM Salihu - Journal of the National …, 2022 - Elsevier
Introduction Cystic fibrosis (CF), an inherited autosomal recessive disease that results in the
accumulation of mucus and damage primarily to the respiratory and digestive tracts is …