Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: Current practices and research priorities
S Lanzkron, GS Sawicki, KL Hassell… - Journal of clinical and …, 2018 - cambridge.org
IntroductionA growing population of adults living with severe, chronic childhood-onset health
conditions has created a need for specialized health care delivered by providers who have …
conditions has created a need for specialized health care delivered by providers who have …
Socioeconomic determinants of respiratory health in patients with cystic fibrosis: implications for treatment strategies
GR Oates, MS Schechter - Expert review of respiratory medicine, 2022 - Taylor & Francis
Introduction Great variation exists in the progression and outcomes of cystic fibrosis (CF)
lung disease, due to both genetic and environmental influences. Social determinants …
lung disease, due to both genetic and environmental influences. Social determinants …
Social inequities and cystic fibrosis outcomes: we can do better
GR Oates, MS Schechter - Annals of the American Thoracic Society, 2021 - atsjournals.org
11 Somayaji R, Russell R, Cogen JD, Goss CH, Nick SE, Saavedra MT, et al. Oral
azithromycin use and the recovery of lung function from pulmonary exacerbations treated …
azithromycin use and the recovery of lung function from pulmonary exacerbations treated …
Patterns of health insurance coverage and lung disease progression in adolescents and young adults with cystic fibrosis
D Tumin, EM Crowley, SS Li, W Wooten… - Annals of the …, 2021 - atsjournals.org
Rationale: Health insurance coverage has been implicated as a socioeconomic factor
affecting clinical outcomes in patients with cystic fibrosis (CF), but evidence for this is mixed …
affecting clinical outcomes in patients with cystic fibrosis (CF), but evidence for this is mixed …
Short-and long-term health consequences of gaps in health insurance coverage among young adults
G Horne, A Gautam, D Tumin - Population Health Management, 2022 - liebertpub.com
In cross-sectional data, gaps in health insurance coverage are associated with worse health
and lower utilization of preventive services. The authors investigated if these associations …
and lower utilization of preventive services. The authors investigated if these associations …
Implications of pediatric palliative consultation for intensive care unit stay
ZM Rossfeld, R Miller, D Tumin, JD Tobias… - Journal of palliative …, 2019 - liebertpub.com
Background: The impact of specialty pediatric palliative care (PPC) on intensive care unit
(ICU) length of stay for children is unclear. Objective: To estimate the impact of PPC …
(ICU) length of stay for children is unclear. Objective: To estimate the impact of PPC …
Aiming to Improve Equity in Pulmonary Health: Cystic Fibrosis
GR Oates, MS Schechter - Clinics in Chest Medicine, 2023 - chestmed.theclinics.com
Cystic fibrosis (CF), the second most common lifeshortening autosomal recessive genetic
disorder in the United States, is characterized by abnormal secretions in multiple organ …
disorder in the United States, is characterized by abnormal secretions in multiple organ …
Preventive service utilization among adults with cystic fibrosis covered by private insurance is comparable to the general population
Background As the life expectancy of the cystic fibrosis (CF) population is lengthening with
modulator therapies, diligent age-appropriate screening and preventive care are …
modulator therapies, diligent age-appropriate screening and preventive care are …
Understanding treatment adherence in cystic fibrosis: Challenges and opportunities
EF Muther, JL Butcher, KA Riekert - Cystic Fibrosis: A Multi-Organ System …, 2020 - Springer
Significant advancements in the treatment of cystic fibrosis (CF) have led to drastically
improved medical outcomes for those living with this illness. While these improvements have …
improved medical outcomes for those living with this illness. While these improvements have …
Assessment of hospitalization rates, factors associated with hospitalization and in-patient mortality in pediatric patients with cystic fibrosis
Introduction Cystic fibrosis (CF), an inherited autosomal recessive disease that results in the
accumulation of mucus and damage primarily to the respiratory and digestive tracts is …
accumulation of mucus and damage primarily to the respiratory and digestive tracts is …