Despite the plethora of empirical studies conducted to date, debate continues about whether
and to what extent results should be returned to participants of genomic research. We aimed …

The majority of biobank policies and consent forms do not address post-mortem use of data
for medical research, thus causing uncertainty after research participants' death. This …

Background Assess process, uptake, validity and resource needs for return of actionable
research findings to biobank participants. Methods Participants were prospectively enrolled …

Background Biobanks are considered to be key infrastructures for research development
and have generated a lot of debate about their ethical, legal and social implications (ELSI) …

Advances in genome sequencing together with the introduction of personalized medicine
offer promising new avenues for research and precision treatment, particularly in the field of …

Whether or not to offer individual genetic results to research participants has been the
subject of considerable debate, yet consensus regarding what, when, and how to return …

The recent movement toward returning individual research results to study
subjects/participants generates ethical and legal challenges for laboratories performing …

There has been little discussion of the way genomic research results should be returned and
how to obtain informed consent for this. We systematically searched the empirical literature …

UvA-DARE (Digital Academic Repository) Page 1 UvA-DARE is a service provided by the library
of the University of Amsterdam (https://dare.uva.nl) UvA-DARE (Digital Academic Repository) …

DeAngelo, 72, as the suspected Golden State Killer. A retired policeman, DeAngelo was
charged with committing a series of horrific crimes, including 12 murders and more than 50 …