[HTML][HTML] Direct participation of people with communication disabilities in research on poverty and disabilities in low and middle income countries: A critical review

C Jagoe, C McDonald, M Rivas, N Groce - Plos one, 2021 - journals.plos.org
Introduction An estimated 1 billion people with disabilities live in low and middle income
countries, a population that includes people with communication disabilities (PwCD). PwCD …

[HTML][HTML] Inclusion of people with aphasia in stroke trials: a systematic search and review

C Shiggins, B Ryan, F Dewan, J Bernhardt… - Archives of Physical …, 2024 - Elsevier
Background Although people with aphasia (PwA) represent 30% of stroke survivors, they
are frequently excluded from stroke research, or their inclusion is unclear. Such practice …

Towards the consistent inclusion of people with aphasia in stroke research irrespective of discipline

C Shiggins, B Ryan, R O'Halloran, E Power… - Archives of Physical …, 2022 - Elsevier
People with aphasia have been systematically excluded from stroke research or included
without the necessary modifications, threatening external study validity. In this paper, we …

[HTML][HTML] Dosages of swallowing exercises prescribed in stroke rehabilitation: a medical record audit

J Choy, F Pourkazemi, C Anderson, H Bogaardt - Dysphagia, 2023 - Springer
This study investigated how swallowing exercise dosage is recorded, and what swallowing
exercise dosages are reported in a stroke rehabilitation setting. We additionally explored the …

Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech & Language Therapists in Ireland

M Manning, C Cuskelly, E Russ… - Health & Social Care in …, 2020 - Wiley Online Library
Living well with post‐stroke aphasia is supported by responsive, collaborative heath and
related services, aphasia information and training for people with aphasia (PWA) and their …

The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults

M Manning, A MacFarlane, A Hickey… - Disability and …, 2022 - Taylor & Francis
Purpose This study aimed to explore the perspectives of working-aged adults with post-
stroke aphasia (PWA) towards what has or would help them in living well with aphasia …

Development of an “aphasia-accessible participant in research experience survey” through co-production

C Shiggins, D Coe, L Gilbert… - Aphasiology, 2022 - Taylor & Francis
Introduction Feedback is essential for the development and enhancement of processes.
Everyone who participates in research should have the opportunity to provide feedback on …

Experiences of language and communication after brain-tumour treatment: A long-term follow-up after glioma surgery

S Åke, L Hartelius, AS Jakola… - Neuropsychological …, 2023 - Taylor & Francis
The purpose of this study was to explore how persons having received various treatments
for glioma, a type of brain tumour, experience their language, speech, and communication in …

Measuring the intensive care experience: A cross‐sectional survey of patient and family experiences of critical care

H Williams, J Gow, R Rana, A Rouse… - Journal of clinical …, 2021 - Wiley Online Library
Abstract Aims and Objectives To report patient and family intensive care experiences using
the Measuring the Intensive Care Experience (MICE) tool across two intensive care units …

[HTML][HTML] A scoping review examining patient experience and what matters to people experiencing homelessness when seeking healthcare

JP Miller, J Hutton, C Doherty, S Vallesi… - BMC Health Services …, 2024 - Springer
Background Homelessness is associated with significant health disparities. Conventional
health services often fail to address the unique needs and lived experience of homeless …