Information needs of informal caregivers of older adults with chronic health conditions

KT Washington, SE Meadows, SG Elliott… - Patient education and …, 2011 - Elsevier
OBJECTIVE: To systematically examine current evidence pertaining to information needs of
informal caregivers of older adults with chronic health conditions. METHODS: Structured …

Concerns and potential improvements in end-of-life care from the perspectives of older patients and informal caregivers: a scoping review

M Motamedi, C Brandenburg, M Bakhit, ZA Michaleff… - BMC geriatrics, 2021 - Springer
Background Overtreatment in advanced age ie aggressive interventions that do not improve
survival and are potentially harmful, can impair quality of care near the end of life (EOL). As …

[HTML][HTML] Preparing family caregivers for death and bereavement. Insights from caregivers of terminally ill patients

RS Hebert, R Schulz, VC Copeland… - Journal of pain and …, 2009 - Elsevier
Many family caregivers are unprepared for the death of their loved one and may suffer from
worse mental health as a result. We therefore sought to determine the factors that family …

[HTML][HTML] Meaningful communication before death, but not present at the time of death itself, is associated with better outcomes on measures of depression and …

H Otani, S Yoshida, T Morita, M Aoyama… - Journal of pain and …, 2017 - Elsevier
Context Few studies have explored the clinical significance of the family's presence or
absence at the moment of a patient's death and meaningful communication (saying …

The perspectives of bereaved family members on their experiences of support in palliative care

T Lundberg, M Olsson, CJ Fürst - International journal of …, 2013 - magonlinelibrary.com
Aim: To explore family members' supportive interactions in palliative care and the emotional
experiences that they associate with these interactions. Methods: Qualitative individual …

Exploring preferences for place of death with terminally ill patients: qualitative study of experiences of general practitioners and community nurses in England

D Munday, M Petrova, J Dale - Bmj, 2009 - bmj.com
Objective To explore the experiences and perceptions of general practitioners and
community nurses in discussing preferences for place of death with terminally ill patients …

Experiences of grief-bereavement after a medically assisted death in Canada: Bringing death to life

R Beuthin, A Bruce, M Thompson, AE Andersen… - Death studies, 2022 - Taylor & Francis
Medical assistance in dying (MAiD) legislation was passed in Canada in 2016, yet the
bereavement experience of family and friends is not well understood. Using interpretive …

Understanding the needs of family caregivers of older adults dying with dementia

GN Thompson, K Roger - Palliative & supportive care, 2014 - cambridge.org
Objectives: A challenge in understanding the needs of dementia family caregivers (DFC)
within the purview of dementia as a terminal illness rests on the fact that literature in this …

[HTML][HTML] Patient complaints about communication in cancer care settings: Hidden between the lines

A Hult, E Lundgren, C Fröjd, A Lindam… - Patient Education and …, 2023 - Elsevier
Objectives To investigate patient complaints in cancer care settings reported to patient
advisory committees (PACs) and describe the frequency and content of communication …

A metasynthesis study of family caregivers' transition experiences caring for community-dwelling persons with advanced cancer at the end of life

W Duggleby, J Tycholiz, L Holtslander… - Palliative …, 2017 - journals.sagepub.com
Background: Family caregivers (broadly defined as family and friends) experience multiple
concurrent transitions when caring for a person with advanced cancer. Aims: To (a) explore …