Direct-to-consumer genetic testing: user motivations, decision making, and perceived utility of results
Abstract Background/Aims: To describe the interests, decision making, and responses of
consumers of direct-to-consumer personal genomic testing (DTC-PGT) services. Methods …
consumers of direct-to-consumer personal genomic testing (DTC-PGT) services. Methods …
[HTML][HTML] Behavioural changes, sharing behaviour and psychological responses after receiving direct-to-consumer genetic test results: a systematic review and meta …
KFJ Stewart, A Wesselius, MAC Schreurs… - Journal of community …, 2018 - Springer
It has been hypothesised that direct-to-consumer genetic tests (DTC-GTs) could stimulate
health behaviour change. However, genetic testing may also lead to anxiety and distress or …
health behaviour change. However, genetic testing may also lead to anxiety and distress or …
[HTML][HTML] Physician-reported benefits and barriers to clinical implementation of genomic medicine: a multi-site IGNITE-network survey
A Owusu Obeng, K Fei, KD Levy, AR Elsey… - Journal of personalized …, 2018 - mdpi.com
Genetic medicine is one of the key components of personalized medicine, but adoption in
clinical practice is still limited. To understand potential barriers and provider attitudes, we …
clinical practice is still limited. To understand potential barriers and provider attitudes, we …
Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies
J Johnston, JD Lantos, A Goldenberg… - Hastings Center …, 2018 - Wiley Online Library
Many scientists and doctors hope that affordable genome sequencing will lead to more
personalized medical care and improve public health in ways that will benefit children …
personalized medical care and improve public health in ways that will benefit children …
Relationships between health literacy and genomics-related knowledge, self-efficacy, perceived importance, and communication in a medically underserved …
KA Kaphingst, M Blanchard, L Milam… - Journal of health …, 2016 - Taylor & Francis
The increasing importance of genomic information in clinical care heightens the need to
examine how individuals understand, value, and communicate about this information. Based …
examine how individuals understand, value, and communicate about this information. Based …
Consumer perceptions of interactions with primary care providers after direct-to-consumer personal genomic testing
CH Van Der Wouden, DA Carere… - Annals of internal …, 2016 - acpjournals.org
Background: Direct-to-consumer (DTC) personal genomic testing (PGT) allows individuals to
learn about their genetic makeup without going through a physician, but some consumers …
learn about their genetic makeup without going through a physician, but some consumers …
[HTML][HTML] Do genetic ancestry tests increase racial essentialism? Findings from a randomized controlled trial
Genetic ancestry testing is a billion-dollar industry, with more than 26 million tests sold by
2018, which raises concerns over how it might influence test-takers' understandings of race …
2018, which raises concerns over how it might influence test-takers' understandings of race …
How well do customers of direct-to-consumer personal genomic testing services comprehend genetic test results? Findings from the impact of personal genomics …
JE Ostergren, MC Gornick, DA Carere, SS Kalia… - Public health …, 2015 - karger.com
Aim: To assess customer comprehension of health-related personal genomic testing (PGT)
results. Methods: We presented sample reports of genetic results and examined responses …
results. Methods: We presented sample reports of genetic results and examined responses …
Genetics adviser: a protocol for a mixed-methods randomised controlled trial evaluating a digital platform for genetics service delivery
S Shickh, D Hirjikaka, M Clausen, R Kodida… - BMJ open, 2022 - bmjopen.bmj.com
Introduction The high demand for genetic tests and limited supply of genetics professionals
has created a need for alternative service delivery models. Digital tools are increasingly …
has created a need for alternative service delivery models. Digital tools are increasingly …
[HTML][HTML] The many facets of genetic literacy: assessing the scalability of multiple measures for broad use in survey research
Objectives To determine how three dimensions of genetic literacy (familiarity, skills, and
factual knowledge) fit the hierarchy of knowledge outlined in EM Rogers' Diffusion of …
factual knowledge) fit the hierarchy of knowledge outlined in EM Rogers' Diffusion of …