Direct-to-consumer genetic testing: user motivations, decision making, and perceived utility of results

JS Roberts, MC Gornick, DA Carere… - Public Health …, 2017 - karger.com
Abstract Background/Aims: To describe the interests, decision making, and responses of
consumers of direct-to-consumer personal genomic testing (DTC-PGT) services. Methods …

[HTML][HTML] Behavioural changes, sharing behaviour and psychological responses after receiving direct-to-consumer genetic test results: a systematic review and meta …

KFJ Stewart, A Wesselius, MAC Schreurs… - Journal of community …, 2018 - Springer
It has been hypothesised that direct-to-consumer genetic tests (DTC-GTs) could stimulate
health behaviour change. However, genetic testing may also lead to anxiety and distress or …

[HTML][HTML] Physician-reported benefits and barriers to clinical implementation of genomic medicine: a multi-site IGNITE-network survey

A Owusu Obeng, K Fei, KD Levy, AR Elsey… - Journal of personalized …, 2018 - mdpi.com
Genetic medicine is one of the key components of personalized medicine, but adoption in
clinical practice is still limited. To understand potential barriers and provider attitudes, we …

Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies

J Johnston, JD Lantos, A Goldenberg… - Hastings Center …, 2018 - Wiley Online Library
Many scientists and doctors hope that affordable genome sequencing will lead to more
personalized medical care and improve public health in ways that will benefit children …

Relationships between health literacy and genomics-related knowledge, self-efficacy, perceived importance, and communication in a medically underserved …

KA Kaphingst, M Blanchard, L Milam… - Journal of health …, 2016 - Taylor & Francis
The increasing importance of genomic information in clinical care heightens the need to
examine how individuals understand, value, and communicate about this information. Based …

Consumer perceptions of interactions with primary care providers after direct-to-consumer personal genomic testing

CH Van Der Wouden, DA Carere… - Annals of internal …, 2016 - acpjournals.org
Background: Direct-to-consumer (DTC) personal genomic testing (PGT) allows individuals to
learn about their genetic makeup without going through a physician, but some consumers …

[HTML][HTML] Do genetic ancestry tests increase racial essentialism? Findings from a randomized controlled trial

WD Roth, Ş Yaylacı, K Jaffe, L Richardson - PloS one, 2020 - journals.plos.org
Genetic ancestry testing is a billion-dollar industry, with more than 26 million tests sold by
2018, which raises concerns over how it might influence test-takers' understandings of race …

How well do customers of direct-to-consumer personal genomic testing services comprehend genetic test results? Findings from the impact of personal genomics …

JE Ostergren, MC Gornick, DA Carere, SS Kalia… - Public health …, 2015 - karger.com
Aim: To assess customer comprehension of health-related personal genomic testing (PGT)
results. Methods: We presented sample reports of genetic results and examined responses …

Genetics adviser: a protocol for a mixed-methods randomised controlled trial evaluating a digital platform for genetics service delivery

S Shickh, D Hirjikaka, M Clausen, R Kodida… - BMJ open, 2022 - bmjopen.bmj.com
Introduction The high demand for genetic tests and limited supply of genetics professionals
has created a need for alternative service delivery models. Digital tools are increasingly …

[HTML][HTML] The many facets of genetic literacy: assessing the scalability of multiple measures for broad use in survey research

LR Abrams, CM McBride, GW Hooker, JN Cappella… - PloS one, 2015 - journals.plos.org
Objectives To determine how three dimensions of genetic literacy (familiarity, skills, and
factual knowledge) fit the hierarchy of knowledge outlined in EM Rogers' Diffusion of …