Navigating disagreement and conflict in the context of a brain-based definition of death

C Simpson, K Lee-Ameduri, M Hartwick… - Canadian Journal of …, 2023 - Springer
In this paper, we discuss situations in which disagreement or conflict arises in the critical
care setting in relation to the determination of death by neurologic criteria, including the …

Neurological conditions: Prognostic communication, shared decision making, and symptom management

D Peralta, J Bogetz, ME Lemmon - Seminars in Fetal and Neonatal …, 2023 - Elsevier
Neonatal neurologic conditions represent a heterogeneous group of illnesses that can pose
significant challenges to infants, their families, and clinicians. Neonates with neurologic …

It's about living a normal life: parents' quality of life when their child has a life-threatening or life-limiting condition-a qualitative study

TB Kittelsen, VB Lorentsen, C Castor, A Lee… - BMC Palliative Care, 2024 - Springer
Background Pediatric palliative care (PPC) seeks to enhance the quality of life (QoL) for both
children and their families. While most studies within PPC have focused on the ill child's …

Care provider behaviors that shape parent identity as a “good parent” to their seriously ill child

ML Neumann, MS Weaver, B Lord, L Wiener… - Palliative medicine …, 2021 - liebertpub.com
Background: Parents of medically complex children hold deeply personal definitions of how
to be “good parents” that guide their medical decision making and interactions with …

Parents as advocates for pediatric palliative care

BT Lord, W Morrison, RD Goldstein, C Feudtner - Pediatrics, 2021 - publications.aap.org
POTENTIAL CONFLICT OF INTEREST: Ms Lord is founder of the nonprofit Courageous
Parents Network (www. CourageousParentsNetwork. org) and cofounder of the Cameron …

Requests for Directed Blood Donations

MS Weaver, MEM Yee, CE Lawrence… - …, 2023 - publications.aap.org
This Ethics Rounds presents a request for directed blood donation. Two parents feel
helpless in the setting of their daughter's new leukemia diagnosis and want to directly help …

Seminars in Fetal & neonatal medicine: Palliative and end of life care in the NICU.

D Peralta, J Bogetz, ME Lemmon - Seminars in Fetal & Neonatal …, 2023 - europepmc.org
Neonatal neurologic conditions represent a heterogeneous group of illnesses that can pose
significant challenges to infants, their families, and clinicians. Neonates with neurologic …

A Narrative Review of Pediatric Respite Care Initiatives in the United States

T Ferragamo, KJ Pituch, T Sorkin, N Simon… - Journal of Hospice & …, 2022 - journals.lww.com
Abstract Families of children receiving palliative care depict lack of respite services as a top
unmet need. Although the benefits of access to respite services are notable, little is known …

Parenting and health: the major challenge of complex relations

D Pereira - Children, 2021 - mdpi.com
Parenting is an interpersonal process associated with taking care and fostering the healthy
development of children and young people. Parental behavior stems from the characteristics …

“Being a Good Parent” During Times of Illness as Defined by Chinese Children With Cancer, Their Parents, and Providers

Z Zhang, H Huang, M Duan, L Yu, L Cheng - Cancer Nursing, 2022 - journals.lww.com
Background Identifying the definition of “being a good parent” facilitates the understanding
of parents' personal beliefs and deeds regarding their ill child. Objective The aim of this …