Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies

M Sellars, O Chung, L Nolte, A Tong… - Palliative …, 2019 - journals.sagepub.com
Background: Advance care planning aims to ensure that care received during serious and
chronic illness is consistent with the person's values, preferences and goals. However, less …

Enhancing shared and surrogate decision making for people living with dementia: a systematic review of the effectiveness of interventions

A Geddis‐Regan, L Errington, C Abley… - Health …, 2021 - Wiley Online Library
Background Dementia can have a profound impact on decision making. People living with
dementia (PLwD) often need to make decisions about health care, and, as dementia …

[HTML][HTML] End-of-life care for people with advanced dementia and pain: a qualitative study in Swedish nursing homes

E Lundin, TE Godskesen - BMC nursing, 2021 - Springer
Abstract Background Of the Swedish people with advanced dementia, the majority die in
nursing homes. Unresolved pain can occur in people with a terminal illness such as …

Supporting families in end-of-life care and bereavement in the COVID-19 era

KJ Moore, EL Sampson, N Kupeli… - International …, 2020 - cambridge.org
Mortality from coronavirus disease 2019 (COVID-19) increases with age, and those over 80
are particularly vulnerable (Verity et al., 2020). Most national data on COVID-19 will …

Determining medical decision-making capacity in brain tumor patients: why and how?

A Pace, JAF Koekkoek, MJ Van Den Bent… - Neuro-oncology …, 2020 - academic.oup.com
Background Brain tumor patients are at high risk of impaired medical decision-making
capacity (MDC), which can be ethically challenging because it limits their ability to give …

Caring for people living with dementia in their own homes: A qualitative study exploring the role and experiences of registered nurses within a district nursing service …

J Hoe, A Trickey, C McGraw - International journal of older …, 2023 - Wiley Online Library
Background In the UK, district nursing services (DNS) deliver care to people intheir own
homes and have regular contact with people with dementia. Research conducted with …

Decision aids to support decision-making in dementia care: a systematic review

N Davies, B Schiowitz, G Rait, V Vickerstaff… - International …, 2019 - cambridge.org
Objectives: We aimed to critically evaluate decision aids developed for practitioners and
caregivers when providing care for someone with dementia or for use by people with …

[HTML][HTML] Challenges faced during the COVID-19 pandemic by family carers of people living with dementia towards the end of life

N Aker, E West, N Davies, KJ Moore… - BMC health services …, 2021 - Springer
Background People living with dementia account for a large proportion of deaths due to
COVID-19. Family carers are faced with making significant and emotive decisions during the …

[HTML][HTML] Developing an applied model for making decisions towards the end of life about care for someone with dementia

N Davies, T De Souza, G Rait, J Meehan… - PLoS One, 2021 - journals.plos.org
Background Many people with dementia reach the end-of-life without an advance care plan.
Many are not ready to have conversations about end-of-life, and decision-making is left to …

[HTML][HTML] Discordance and concordance on perception of quality care at end of life between older patients, caregivers and clinicians: a scoping review

J Carlini, D Bahudin, ZA Michaleff, E Plunkett… - European geriatric …, 2022 - Springer
Background This scoping review aimed to investigate the presence of discordance or
concordance in the perceptions of end-of-life (EOL) care quality between consumers (ie …