Redesigning cancer care delivery: views from patients and caregivers

MI Patel, VS Periyakoil, DW Blayney… - Journal of Oncology …, 2017 - ascopubs.org
Introduction: Cancer is a leading cause of death in the United States. Although treatments
have improved, patients and caregivers continue to report significant gaps in their care. The …

Communication in end-stage cancer: review of the literature and future research

ED Trice, HG Prigerson - Journal of health communication, 2009 - Taylor & Francis
Concerns have been raised about the quality of life and health care received by cancer
patients at the end of life (EOL). Many patients die with pain and other distressing symptoms …

Use of advance directives in long-term care populations

A Jones, AJ Moss, LD Harris-Kojetin - 2011 - stacks.cdc.gov
An advance directive (AD) allows a patient to communicate health care preferences in the
event that he or she is no longer able to make these decisions (1). Many view advance care …

Occurrence and timing of advance care planning in persons with dementia in general practice: analysis of linked electronic health records and administrative data

B Azizi, B Tilburgs, HPJ van Hout… - Frontiers in public …, 2022 - frontiersin.org
Background Advance care planning (ACP) is a process of communication in which patients
and family caregivers discuss preferences for future care with the healthcare team. For …

Disparities in advance care planning among older US immigrants

D Mindo‐Panusis, RL Sudore, I Cenzer… - Journal of the …, 2023 - Wiley Online Library
Background Despite known racial disparities in advance care planning (ACP), little is known
about ACP disparities experienced by US immigrants. Methods We used data from the 2016 …

Development of a prognostic awareness impact scale for patients with advanced cancer

K Brenner, JA Greer, V Jackson, E Park… - Journal of Palliative …, 2022 - liebertpub.com
Background: No reliable instruments exist to measure prognostic awareness and its
psychological and behavioral impacts for patients with advanced cancer. Methods: We …

Race differences in advance directive completion: the narrowing gap between White and African American older adults

CS Koss, TA Baker - Journal of aging and health, 2017 - journals.sagepub.com
Objective: Rates of advance directive completion have increased over the past decade, but
significant race differences remain. This study examined how overall increases in advance …

Advance care planning as perceived by marginalized populations: Willing to engage and facing obstacles

S Izumi, E Garcia, A Kualaau, DE Sloan… - Plos one, 2024 - journals.plos.org
Background Health disparities exist in end-of-life (EOL) care. Individuals and communities
that are marginalized due to their race, ethnicity, income, geographic location, language, or …

Clinically informed machine learning elucidates the shape of hospice racial disparities within hospitals

IS Khayal, AJ O'Malley, AE Barnato - NPJ Digital Medicine, 2023 - nature.com
Racial disparities in hospice care are well documented for patients with cancer, but the
existence, direction, and extent of disparity findings are contradictory across the literature …

Pathways from religion to advance care planning: beliefs about control over length of life and end-of-life values

MM Garrido, EL Idler, H Leventhal, D Carr - The Gerontologist, 2013 - academic.oup.com
Abstract Purpose of the Study: To evaluate the extent to which religious affiliation and self-
identified religious importance affect advance care planning (ACP) via beliefs about control …