Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …

Context Parents of patients with a serious illness experience psychological distress, which
impacts parents' wellbeing and, potentially, their ability to care for their children. Parent …

Background This study examined care needs and utilisation of psychosocial support
services among parents of children who had received specialist paediatric palliative care, as …

Aims: This feasibility study aimed to systematically identify and address the support needs of
parents of children with life-limiting illnesses and to assess whether the systematic approach …

Each year, more than 8 million children worldwide require specialized palliative care, yet
there is little evidence available in pediatrics on the characteristics of the end of life in this …

Few studies have described the goals and wishes of parents caring for their children with
rare diseases, specifically when children are unable to communicate their preferences …

Today, there is a shift towards care being given closer to the patient, with more children
receiving care in their homes. Care at home has proven to be a viable alternative to hospital …

Background: The greater proportion of children with a life-limiting condition (LLC) and their
families want to remain at home as much as possible. Building capability in paediatric …

BACKGROUND AND OBJECTIVE Pediatric rare diseases are often life-limiting conditions
and/or require constant caregiving. Investigators assessed the initial efficacy of the FAmily …

Parents with adolescents who abuse substances need support. They have high stress levels
and low quality of life compared to other parents. This is because they have unmet support …