[HTML][HTML] The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia–tracheoesophageal …

U Krishnan, MW Dumont, H Slater, BD Gold… - Nature Reviews …, 2023 - nature.com
Oesophageal atresia–tracheoesophageal fistula (EA-TEF) is a common congenital digestive
disease. Patients with EA-TEF face gastrointestinal, surgical, respiratory, otolaryngological …

[HTML][HTML] Psychometric performance of a condition-specific quality-of-life instrument for Dutch children born with esophageal atresia

CA Ten Kate, H IJsselstijn, M Dellenmark-Blom… - Children, 2022 - mdpi.com
A condition-specific instrument (EA-QOL©) to assess quality of life of children born with
esophageal atresia (EA) was developed in Sweden and Germany. Before implementing this …

[HTML][HTML] Prophylactic acid-suppression medication to prevent anastomotic strictures after oesophageal atresia surgery: a systematic review and meta-analysis

T Wyllie, E Folaranmi, P Sekaran, WJ Watkins… - Journal of Pediatric …, 2023 - Elsevier
Background Anastomotic stricture is a common postoperative complication of oesophageal
atresia±tracheoesophageal fistula (OA/TOF) repair. Acid gastro-oesophageal reflux disease …

Longitudinal health status and quality of life in congenital diaphragmatic hernia

II Sreeram, JM Schnater, J van Rosmalen… - …, 2023 - publications.aap.org
OBJECTIVES To longitudinally evaluate self-reported health status (HS) and quality of life
(QoL) in 8-and 12-year-old survivors of congenital diaphragmatic hernia (CDH). We …

[HTML][HTML] Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2–7 across 14 countries

International EA-QoL Group - Frontiers in Pediatrics, 2023 - frontiersin.org
Background Esophageal atresia (EA) is a rare congenital anomaly characterized by a
discontinuity of the esophagus. Following surgical repair, survival rates have improved …

[HTML][HTML] The DUX-25 after twenty-five years: new analyses and reference data

HM Koopman, BSD Telkamp, A Hijkoop, JA Reuser… - Children, 2022 - mdpi.com
Twenty-five years after its inception, we present new analyses and reference data for the
DUX-25, a questionnaire on health-related quality of life for children 8–17 years old and …

Disease-specific quality of life as part of the long-term follow-up for children born with esophageal atresia in an academic unit in South Africa—a pilot study

C de Vos, M Dellenmark-Blom… - Diseases of the …, 2024 - academic.oup.com
As neonatal mortality rates have decreased in esophageal atresia (EA), there is a growing
focus on quality of life (QoL) in these children. No study from Africa has reported on this …

[HTML][HTML] New insights in the prevalence of scoliosis and musculoskeletal asymmetries in adolescents with esophageal atresia

UI Møinichen, A Mikkelsen, R Gunderson… - Journal of Pediatric …, 2023 - Elsevier
Background Increased risk of scoliosis and musculoskeletal abnormalities in adolescents
with esophageal atresia (EA) is reported, but the impact of these abnormalities on physical …

Recent Advances in the Genetic Pathogenesis, Diagnosis, and Management of Esophageal Atresia and Tracheoesophageal Fistula: A Review

D O'Shea, N Schmoke, C Porigow… - Journal of Pediatric …, 2023 - journals.lww.com
Infants born with esophageal atresia and tracheoesophageal fistula, a complex congenital
malformation occurring in 1/2500–4000 live births, may suffer threats to their cardiac …

Feeding and swallowing characteristics of children with esophageal atresia and tracheoesophageal fistula

J Maybee, J Deck, E Jensen, A Ruiz… - Journal of Pediatric …, 2023 - journals.lww.com
Objectives: This study aimed to characterize feeding/swallowing difficulties in children with
esophageal atresia and/or tracheoesophageal fistula (EA/TEF) and evaluate associations …