Disease-specific quality of life as part of the long-term follow-up for children born with esophageal atresia in an academic unit in South Africa—a pilot study
C de Vos, M Dellenmark-Blom… - Diseases of the …, 2024 - academic.oup.com
As neonatal mortality rates have decreased in esophageal atresia (EA), there is a growing
focus on quality of life (QoL) in these children. No study from Africa has reported on this …
focus on quality of life (QoL) in these children. No study from Africa has reported on this …
Recent Advances in the Genetic Pathogenesis, Diagnosis, and Management of Esophageal Atresia and Tracheoesophageal Fistula: A Review
D O'Shea, N Schmoke, C Porigow… - Journal of Pediatric …, 2023 - journals.lww.com
Infants born with esophageal atresia and tracheoesophageal fistula, a complex congenital
malformation occurring in 1/2500–4000 live births, may suffer threats to their cardiac …
malformation occurring in 1/2500–4000 live births, may suffer threats to their cardiac …
A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New …
OKC Spivack, M Dellenmark-Blom… - European Journal of …, 2024 - thieme-connect.com
Introduction Patient-reported outcome measures (PROMs) can be employed in both
research and clinical care to enhance our understanding of outcomes that matter to patients …
research and clinical care to enhance our understanding of outcomes that matter to patients …
Gastric emptying and myoelectrical activity testing in children with esophageal atresia: A pilot study
C Mussies, G Duvoisin, A Le, S Birro, S Hulbert… - JPGN …, 2024 - Wiley Online Library
Objectives Abnormalities of gastric function in children with esophageal atresia (EA) could
potentially contribute to gastrointestinal symptoms and reduced quality of life (QOL) …
potentially contribute to gastrointestinal symptoms and reduced quality of life (QOL) …
Health-related quality of life following aortopexy for tracheomalacia: a cross-sectional study
BL Brockbank, GSJ Dewar, RJ Hewitt… - Interdisciplinary …, 2024 - academic.oup.com
OBJECTIVES The objective was to measure health-related quality of life (HRQoL) of
children following treatment of all-cause tracheomalacia with aortopexy. METHODS …
children following treatment of all-cause tracheomalacia with aortopexy. METHODS …
Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2–7 across 14 countries
TT König, M Dellenmark-Blom - 2023 - discovery.ucl.ac.uk
Background: Esophageal atresia (EA) is a rare congenital anomaly characterized by a
discontinuity of the esophagus. Following surgical repair, survival rates have improved …
discontinuity of the esophagus. Following surgical repair, survival rates have improved …
[DOC][DOC] TITLE PAGE Title of the manuscript
II Sreeram, JM Schnater, J van Rosmalen… - pure.eur.nl
Objectives To longitudinally evaluate self-reported health status (HS) and quality of life
(QoL) in 8-and 12-year-old survivors of congenital diaphragmatic hernia (CDH). We …
(QoL) in 8-and 12-year-old survivors of congenital diaphragmatic hernia (CDH). We …
[PDF][PDF] New insights in the prevalence of scoliosis and musculoskeletal asymmetries in adolescents with esophageal atresia
S first Authorship, UI Moinichen - scholar.archive.org
Background: Increased risk of scoliosis and musculoskeletal abnormalities in adolescents
with esophageal atresia (EA) is reported, but the impact of these abnormalities on physical …
with esophageal atresia (EA) is reported, but the impact of these abnormalities on physical …