Palliative care as a standard of care in pediatric oncology

MS Weaver, KE Heinze, KP Kelly… - Pediatric blood & …, 2015 - Wiley Online Library
The study team conducted a systematic review of pediatric and adolescent palliative cancer
care literature from 1995 to 2015 using four databases to inform development of a palliative …

Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review

MS Weaver, KE Heinze, CJ Bell, L Wiener… - Palliative …, 2016 - journals.sagepub.com
Background: Despite standardization in disease assessments and curative interventions for
childhood cancer, palliative assessments and psychosocial interventions remain diverse …

Guidance for pediatric end-of-life care

JS Linebarger, V Johnson, RD Boss - Pediatrics, 2022 - publications.aap.org
Background Some pediatric deaths happen within minutes to days of the cause (eg,
unintentional injury, extremely preterm birth, catastrophic illness). Others occur days to years …

[图书][B] Living through loss: Interventions across the life span

NR Hooyman, BJ Kramer, S Sanders - 2021 - books.google.com
Living Through Loss provides a foundational identification of the many ways in which people
experience loss over the life course, from childhood to old age. It examines the interventions …

Prognostic disclosures to children: a historical perspective

BA Sisk, M Bluebond-Langner, L Wiener, J Mack… - …, 2016 - publications.aap.org
Prognostic disclosure to children has perpetually challenged clinicians and parents. In this
article, we review the historical literature on prognostic disclosure to children in the United …

Pediatric palliative care nursing

TF Akard, VL Hendricks-Ferguson… - Annals of palliative …, 2019 - apm.amegroups.org
Palliative care is patient-and family-centered care that enhances quality of life throughout
the illness trajectory and can ease the symptoms, discomfort, and stress for children living …

Breaking bad news: what parents would like you to know

MA Brouwer, ELM Maeckelberghe… - Archives of disease in …, 2021 - adc.bmj.com
Objective Breaking bad news about life-threatening and possibly terminal conditions is a
crucial part of paediatric care for children in this situation. Little is known about how the …

Perinatal palliative care birth planning as advance care planning

DME Cortezzo, K Ellis, A Schlegel - Frontiers in Pediatrics, 2020 - frontiersin.org
Purpose of Review: A significant number of pregnancies are complicated by a fetus with a
life-limiting diagnosis. As diagnoses are made earlier in the pregnancy, families experience …

Ethics, emotions, and the skills of talking about progressing disease with terminally ill adolescents: a review

AR Rosenberg, J Wolfe, L Wiener, M Lyon… - JAMA …, 2016 - jamanetwork.com
Importance For clinicians caring for adolescent patients living with progressive, life-
threatening illness, discussions regarding prognosis, goals of care, and treatment options …

Threading the cloak: palliative care education for care providers of adolescents and young adults with cancer

L Wiener, MS Weaver, CJ Bell… - Clinical oncology in …, 2015 - Taylor & Francis
Medical providers are trained to investigate, diagnose, and treat cancer. Their primary goal
is to maximize the chances of curing the patient, with less training provided on palliative care …