Patient and public involvement in Nordic healthcare research: a scoping review of contemporary practice

KE Dengsø, ST Lindholm, SF Herling… - Research Involvement …, 2023 - Springer
Background Over the past decades, there has been a growing international interest in user
involvement in healthcare research. However, evidence on the management and impact of …

Self-care advice for patients after surgery for oesophageal cancer—a mixed-methods systematic review

A Schandl, K Färnqvist, K Mälberg, S Nielsen… - Journal of Cancer …, 2024 - Springer
Purpose The aim of the literature review was to identify and synthesise research on self-care
advice for oesophageal cancer survivors. Methods A mixed-methods systematic review and …

Health-related quality of life 15 years after oesophageal cancer surgery: a prospective nationwide cohort study

A Schandl, Z Cheng, A Johar, P Lagergren - Journal of Cancer …, 2023 - Springer
Purpose We aimed to study oesophageal cancer survivors' health-related quality of life
(HRQL) 15 years after surgery and to identify factors related to reduced HRQL. Methods A …

[HTML][HTML] Trajectories of patient-reported outcomes after oesophageal cancer surgery-a population-based study

K Färnqvist, K Mälberg, A Johar, A Schandl… - European Journal of …, 2024 - Elsevier
Background This study aimed to investigate the trajectories of patient-reported outcomes for
individuals who have undergone surgery for oesophageal cancer over a five-year post …

Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for …

J Woodford, C Reuther, JL Ljungberg… - Research Involvement …, 2024 - Springer
Introduction Public contribution in research can facilitate the design and conduct of
meaningful research, resulting in feasible and sustainable solutions to healthcare …

Patient organisations' views, motivations and experiences on patient involvement in cancer research: a pilot study in Portugal

C Roquette, S Crisóstomo, T Milagre, RS Ribeiro… - BMJ open, 2024 - bmjopen.bmj.com
Objectives To characterise Portuguese cancer-related patient organisations and analyse
their views, motivations and experiences on patient involvement in cancer research. Design …

The long‐term experience of being a family caregiver of patients surgically treated for oesophageal cancer

CH Ringborg, Y Wengström, A Schandl… - Journal of Advanced …, 2023 - Wiley Online Library
Aim This qualitative study aimed to explore the experience of being family caregivers of
patients treated for oesophageal cancer 2 years after treatment. To better understand the …

Percursos da Ciência Cidadã em Saúde: processos para o engajamento público

I de Oliveira Gama, VRS dos Santos - Em Questão, 2024 - seer.ufrgs.br
Este artigo pretende mapear ações e metodologias de pesquisa no campo da saúde que se
caracterizam como Ciência Cidadã. A partir de uma pesquisa qualitativa e exploratória …

[图书][B] The Perspective of Being a Family Caregiver of a Patient Treated for Oesophageal Cancer-Problems and Needs

CH Ringborg - 2022 - search.proquest.com
There is a need to put family caregivers on the cancer survivorship research agenda.
Research among family caregivers of patients treated for oesophageal cancer is sparse …

[引用][C] Autoria coletiva e autoridade científica frente à ciência aberta: a questão dos direitos autorais em pesquisas colaborativas sobre cannabis medicinal

IO Gama - 2022