Opportunities and Challenges of Prognostic Models for Extremely Preterm Infants

A de Boer, PE van Beek, P Andriessen, F Groenendaal… - Children, 2023 - mdpi.com
Predicting the short-and long-term outcomes of extremely preterm infants remains a
challenge. Multivariable prognostic models might be valuable tools for clinicians, parents …

Shared decision-making in pediatric palliative care in the Netherlands

EM Michiels, CY Joren, MC Kars, JL Aris… - Current problems in …, 2024 - Elsevier
Shared decision-making (SDM) is a process in which health care professionals (HCPs)
involve parents and children-when appropriate-to decide together on future treatment …

Public Attitudes Toward Ethics and Practices in End-of-Life Decision-Making for Neonates

K Schneider, S Roll, T Tissen-Diabaté… - JAMA Network …, 2024 - jamanetwork.com
Importance Attitudes toward end-of-life decision-making in neonatology have been studied
in physicians and other health care professionals and are mostly shaped by their clinical …

“We absolutely had the impression that it was our decision”—a qualitative study with parents of critically ill infants who participated in end-of-life decision making

MF Beyer, K Kuehlmeyer, P Mang, AW Flemmer… - Children, 2022 - mdpi.com
Background: Guidelines recommend shared decision making (SDM) between
neonatologists and parents when a decision has to be made about the continuation of life …

Incorporating parental values in complex paediatric and perinatal decisions

R Geurtzen, DJC Wilkinson - The Lancet Child & Adolescent Health, 2024 - thelancet.com
Incorporating parental values in complex medical decisions for young children is important
but challenging. In this Review, we explore what it means to incorporate parental values in …

Parents' experiences of palliative care decision‐making in neonatal intensive care units: An interpretative phenomenological analysis

K Saint Denny, K Lamore, JL Nandrino… - Acta …, 2024 - Wiley Online Library
Aim This work explores the experiences and meaning attributed by parents who underwent
the decision‐making process of withholding and/or withdrawing life‐sustaining treatment for …

Shared decision making, prospektive Lebensqualität und das beste Interesse des Kindes: ethische Herausforderungen im Kontext von Behandlungsentscheidungen …

D Carvalho, N Primc - Ethik in der Medizin, 2023 - Springer
Behandlungsentscheidungen bei Frühgeburten an der Grenze der Lebensfähigkeit stellen
eine große Herausforderung dar. In der Neonatologie hat sich das Konzept einer …

Pediatric Decision-Making: ethical aspects specific to neonates

JR Malone, MR Mercurio, LM Kopelman - Perspectives in Biology …, 2024 - muse.jhu.edu
Recently published consensus recommendations on pediatric decision-making by Salter
and colleagues (2023) did not address neonatal decision-making, due to the unique …