Background: Despite standardization in disease assessments and curative interventions for
childhood cancer, palliative assessments and psychosocial interventions remain diverse …

Importance Parents' beliefs about what they need to do to be a good parent when their
children are seriously ill influence their medical decisions, and better understanding of these …

Health care providers recognize that delivery of effective communication with family
members of children with life-threatening illnesses is essential to palliative and end-of-life …

This review focuses on parental decision making regarding the care and treatment of
children with cancer. Articles were abstracted from the following sources: Ovid Databases …

The study was to describe the essence of the lived experience of parents with a child with
incurable cancer at the end of life (EOL). A descriptive phenomenological study was …

Precision medicine relies upon artificial intelligence (AI)-driven technologies that raise
ethical and practical concerns. In this study, we developed and validated a measure of …

Background: This article describes the overall attitudes of children, their parents, and
attending physicians toward including or excluding pediatric patients in medical …

Context Parents of seriously ill children hold personal beliefs about what they should do to
be good parents. How these beliefs change over time is unknown. Objectives The objectives …

BACKGROUND Adolescents with cancer cite the opinions of others and expected impact on
others as formative for their care preferences and decisions. The current study first explores …

Background: Parents of children with complex medical needs describe an internal, personal
definition of “trying to be a good parent” for their loved child. Gaps exist in the current “good …