Patients with Ehlers–Danlos syndrome on the diagnostic odyssey: Rethinking complexity and difficulty as a hero's journey
CME Halverson, EW Clayton… - American Journal of …, 2021 - Wiley Online Library
Abstract Patients with hypermobile Ehlers–Danlos syndrome, an hereditary disorder of the
connective tissue, often face a long and difficult diagnostic odyssey in pursuit of a name for …
connective tissue, often face a long and difficult diagnostic odyssey in pursuit of a name for …
Multicomponent interdisciplinary group intervention for self-management of fibromyalgia: a mixed-methods randomized controlled trial
P Bourgault, A Lacasse, S Marchand… - PLoS …, 2015 - journals.plos.org
Background This study evaluated the efficacy of the PASSAGE Program, a structured
multicomponent interdisciplinary group intervention for the self-management of FMS …
multicomponent interdisciplinary group intervention for the self-management of FMS …
Dismissing chronic illness: A qualitative analysis of negative health care experiences
S McManimen, D McClellan, J Stoothoff… - Health care for …, 2019 - Taylor & Francis
In the US, medical training is inadequate regarding the symptomatology, prognosis, and
treatment for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). As a …
treatment for myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). As a …
“Wish I would have known that before I started using it”: Contraceptive messages and information seeking among young women
A Cooke-Jackson, V Rubinsky… - Health Communication, 2023 - Taylor & Francis
In recent decades, women's use of contraception has evolved. Women not only utilize
contraceptives to prevent pregnancy, but also to manage menstruation and other factors …
contraceptives to prevent pregnancy, but also to manage menstruation and other factors …
Impromptu everyday disclosure dances: how women with fibromyalgia respond to disclosure risks at work
M Oldfield, E MacEachen, B Kirsh… - Disability and …, 2016 - Taylor & Francis
Purpose: Findings from a study examining how women with fibromyalgia remain employed
are used to explicate a conceptualization that adds to literature on workplace disclosure of …
are used to explicate a conceptualization that adds to literature on workplace disclosure of …
'You want to show you're a valuable employee': A critical discourse analysis of multi-perspective portrayals of employed women with fibromyalgia
M Oldfield, E MacEachen, M MacNeill… - Chronic …, 2018 - journals.sagepub.com
Background Advice on fibromyalgia, a chronic illness primarily affecting women, often
presents it as incompatible with work and rarely covers how to remain employed. Yet many …
presents it as incompatible with work and rarely covers how to remain employed. Yet many …
“Real-life” treatment of chronic pain: Targets and goals
JN Ablin, D Buskila - Best Practice & Research Clinical Rheumatology, 2015 - Elsevier
Treating chronic pain is a complex challenge. While textbooks and medical education
classically categorize pain as originating from peripheral (nociceptive), neuropathic, or …
classically categorize pain as originating from peripheral (nociceptive), neuropathic, or …
Medicalization and contested illnesses
K Dew, A Scott, A Kirkman, K Dew, A Scott… - Social, political and …, 2016 - Springer
Medicalization is the process by which conditions, experiences, and situations, which were
at one time not seen as medical in nature, come under medical jurisdiction for treatment …
at one time not seen as medical in nature, come under medical jurisdiction for treatment …
The ontological politics of disablement: Heidegger, disability, and the ontological difference
TJ Abrams - 2014 - repository.library.carleton.ca
What does it mean to be disabled? To answer this question, this dissertation uses Martin
Heidegger's concept of the 'ontological difference', the difference between human existence …
Heidegger's concept of the 'ontological difference', the difference between human existence …
[图书][B] Staying in the Workforce with Fibromyalgia
MA Oldfield - 2015 - search.proquest.com
Remaining employed with fibromyalgia can be difficult in the increasingly precarious work
world, where employees are expected to be healthy and able to consistently meet their job …
world, where employees are expected to be healthy and able to consistently meet their job …