Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review
LD Hawke, NY Sheikhan, S Roberts… - Research Involvement and …, 2023 - Springer
Background There is growing recognition that engaging people with lived experience
(PWLE) in mental health and substance use research improves the quality of the research in …
(PWLE) in mental health and substance use research improves the quality of the research in …
[HTML][HTML] Barriers and facilitators of meaningful patient participation at the collective level in healthcare organizations: A systematic review
HJ Westerink, T Oirbans, MM Garvelink… - Health Policy, 2023 - Elsevier
Introduction Collective patient participation, such as patient participation in policy making,
has become increasingly important to achieve high-quality care. However, there is little …
has become increasingly important to achieve high-quality care. However, there is little …
Series: public engagement with research. Part 1: the fundamentals of public engagement with research
S Blackburn, M Clinch, M De Wit, A Moser… - European Journal of …, 2023 - Taylor & Francis
Background In the first of a four-part series, we describe the fundamentals of public
engagement in primary care research. Objectives The article's purpose is to encourage …
engagement in primary care research. Objectives The article's purpose is to encourage …
Patient and public involvement in pragmatic trials: online survey of corresponding authors of published trials
S Vanderhout, P Nevins, SG Nicholls… - … Open Access Journal, 2023 - cmajopen.ca
Background: There are few data on patient and public involvement (PPI) in pragmatic trials.
We aimed to describe the prevalence and nature of PPI within pragmatic trials, describe …
We aimed to describe the prevalence and nature of PPI within pragmatic trials, describe …
A multicomponent family support intervention in intensive care units: study protocol for a multicenter cluster-randomized trial (FICUS Trial)
R Naef, M Filipovic, MM Jeitziner, S von Felten… - Trials, 2022 - Springer
Background Family members of critically ill patients face considerable uncertainty and
distress during their close others' intensive care unit (ICU) stay. About 20–60% of family …
distress during their close others' intensive care unit (ICU) stay. About 20–60% of family …
Recruitment of patients, carers and members of the public to advisory boards, groups and panels in public and patient involved health research: a scoping review
M Gilfoyle, C Melro, E Koskinas, J Salsberg - BMJ open, 2023 - bmjopen.bmj.com
Objectives The objectives of this scoping review are to:(1) identify the distribution of and
context of the recruitment strategies used,(2) explore the facilitators, benefits, barriers and …
context of the recruitment strategies used,(2) explore the facilitators, benefits, barriers and …
e-Consent in UK academic-led clinical trials: current practice, challenges and the need for more evidence
EJ Mitchell, D Appelbe, A Bravery, L Culliford, H Evans… - Trials, 2023 - Springer
Background During the COVID-19 pandemic, in-person healthcare visits were reduced.
Consequently, trial teams needed to consider implementing remote methods for conducting …
Consequently, trial teams needed to consider implementing remote methods for conducting …
What are the strengths and limitations to utilising creative methods in public and patient involvement in health and social care research? A qualitative systematic …
OR Phillips, C Harries, J Leonardi-Bee… - Research Involvement …, 2024 - Springer
Background There is increasing interest in using patient and public involvement (PPI) in
research to improve the quality of healthcare. Ordinarily, traditional methods have been …
research to improve the quality of healthcare. Ordinarily, traditional methods have been …
Evaluating public and patient involvement in interventional research–a newly developed checklist (EPPIIC) with application to the COB-MS feasibility trial
Public and patient involvement (PPI) has been identified as an increasingly desired and,
often, required component of trial methodology–leading to higher quality, more accessible …
often, required component of trial methodology–leading to higher quality, more accessible …
Reporting of PPI and the MCID in phase III/IV randomised controlled trials—a systematic review
J Brennan, MTC Poon, E Christopher, O Fulton… - Trials, 2023 - Springer
Background Patient and public involvement (PPI) in clinical trial design contributes to
ensuring the research objectives and outcome measures are relevant to patients. The …
ensuring the research objectives and outcome measures are relevant to patients. The …