Ethical Issues in the Neonatal ICU Technological advances have altered the boundary
between viable and nonviable newborns and increased the need to consider quality of life in …

Background Latent class analysis (LCA) has been increasingly used to explore preference
heterogeneity, but the literature has not been systematically explored and hence best …

Background Some pediatric deaths happen within minutes to days of the cause (eg,
unintentional injury, extremely preterm birth, catastrophic illness). Others occur days to years …

This clinical practice guideline applies to infants younger than 1 year and is intended for
pediatric clinicians. This guideline has 3 primary objectives. First, it recommends the …

What is it to be “an ideal parent”? Does the answer differ across countries and social
classes? To answer these questions in a way that minimizes bias and ethnocentrism, we …

BACKGROUND: When children are seriously ill, parents rely on communication with their
clinicians. However, in previous research, researchers have not defined how this …

Parents of ill children have willingly identified their personal beliefs about what they should
do or focus on to fulfill their own internal definition of being a good parent for their child. This …

Purpose Decision making is one of the ways in which parents serve as stewards of their
children with cancer, but barriers to informed decision making among parents of children …

BACKGROUND Most parents of children with cancer say they want detailed information
about their child's prognosis. However, prior work has been conducted in populations of …

Context Children with life-shortening serious illnesses and medically-complex care needs
are often cared for by their families at home. Little, however, is known about what aspects of …