Since the first description of cystic fibrosis in 1938, there have been significant advances in
both quality of life and longevity for people living with this disease. In this article we describe …

Cystic fibrosis (CF) is an inherited multisystemic disease that can cause progressive
bronchiectasis, pancreatic endocrine and exocrine insufficiency, distal intestinal obstruction …

Objective We evaluated whether implementation of cystic fibrosis (CF) newborn screening
(NBS) leads to equitable timeliness of initial evaluation. We compared age at first event …

Background Due to the COVID-19 pandemic, there was an uptake of telehealth in cystic
fibrosis care. Previous studies show disparities in telehealth use based on socioeconomic …

Background Mental health concerns are common among persons with cystic fibrosis
(pwCF). If left untreated, unfavorable physical and emotional outcomes may ensue, such as …

Better health and longer survival for many people with cystic fibrosis (PwCF) compels the
continued evolution of the CF care model. Designed to deliver specialized care for a …

Cystic fibrosis (CF) arises from the mutation of a single gene encoding the cystic fibrosis
transmembrane conductance regulator (CFTR), 1 a chloride channel that is widely …

Introduction Newborn screening (NBS) for cystic fibrosis (CF) was implemented in all US
states and DC by 2010. This hypothesis‐generating study was designed to form the basis of …

Background Prognosis and disease severity in cystic fibrosis (CF) are linked to declining
lung function. To characterise lung function by the number of adults in countries with …

This is the second of two companion papers that examine the emotional wellness of children
with cystic fibrosis (CF) during the early years of life, defined here as the period between …