Health in data space: Formative and experiential dimensions of cross-border health data sharing

K Hoeyer, S Green, A Martani, A Middleton… - Big Data & …, 2024 - journals.sagepub.com
Healthcare is increasingly datafied, and a wide range of actors—patients, clinicians,
administrators, policymakers, and industry lobbyists—want to be able to exchange and …

[HTML][HTML] Valuation in emerging technoscience business: a case study of Finnish biobank research

I Helén, H Lehtimäki - European Journal of Innovation Management, 2023 - emerald.com
Purpose The paper contributes to the discussion on valuation in organization studies and
strategic management literature. The nascent literature on valuation practices has examined …

[HTML][HTML] Wearable Technologies for Healthy Ageing: Prospects, Challenges, and Ethical Considerations

S Canali, A Ferretti, V Schiaffonati… - The Journal of Frailty & …, 2024 - Springer
Digital technologies hold promise to modernize healthcare. Such opportunity should be
leveraged also to address the needs of rapidly ageing populations. Against this backdrop …

[HTML][HTML] Ethical and social implications of public–private partnerships in the context of genomic/big health data collection

R Horn, J Merchant - European Journal of Human Genetics, 2024 - nature.com
This paper reports on the findings of an international workshop organised by the UK-
France+ Genomics and Ethics Network (UK-FR+ GENE) in 2022. The focus of the workshop …

[HTML][HTML] Wearable technologies and stress: toward an ethically grounded approach

S Canali, B De Marchi, A Aliverti - International Journal of Environmental …, 2023 - mdpi.com
The widespread use of digital technologies that can be worn on our bodies—wearables—is
presented as a turning point for various areas of biomedical research and healthcare, such …

Exploring the practices of “data-driven innovation” in the European public sector

D Lämmerhirt, M Micheli, S Schade - Data & Policy, 2024 - cambridge.org
The European public sector has for a long time tried to change its activities and its relation to
the public through the production and provision of data and data-based technologies …

A hermeneutic dialogical understanding of data reuse across different access regimes

I Aleixos-Borrás, JJ López - Science as Culture, 2024 - Taylor & Francis
Policy and scholarly discourse emphasizing the panacea of Open (research) Data shapes
expectations, and directs and legitimizes investments in data technologies and …

Using and Interpreting FemTech Data:(Self-) Knowledge, Empowerment, and Sovereignty

S Canali, C Hesselbein - FemTech: Intersectional Interventions in …, 2023 - Springer
The emergence of FemTech has been hailed for addressing the failure of male-dominated
medical and technological industries to take women's health seriously. Wearable technology …

Concevoir des messages personnalisés et offrir des ressources pour les personnes vivant avec la maladie de Parkinson: la perspective de professionnels de la santé

E Poitras - 2023 - ruor.uottawa.ca
Afin de soutenir le processus d'autogestion des personnes vivant avec la maladie de
Parkinson qui tentent de mieux prendre en charge leur maladie et de maintenir une qualité …

Between quantity and quality: competing views on the role of Big Data for causal inference

S Canali, E Ratti - 2023 - philsci-archive.pitt.edu
When does more data help and when does it not in the sciences? In the past decade, this
question has become central because of the phenomenon of Big Data. While these …