Much is known about patient attitudes to ethical and legal questions in the context of
biobanking, particularly regarding privacy protection and consent. However, little is known …

Dynamic consent aims to empower research partners and facilitate active participation in the
research process. Used within the context of biobanking, it gives individuals access to …

Biobanks are increasingly hailed as powerful tools to advance health research. The social
and ethical challenges associated with the implementation and operation of biobanks are …

This chapter describes some of the most commonly used time series techniques in political
communication research. The chapter considers the strengths and limitations of time series …

With the rise of-omics disciplines and biobank research, personal data and biosamples
crossing national borders pose new ethical questions. In this article, informed consent, as …

This paper reports on the design, implementation, and results of a structured public
deliberation on human tissue biobanking conducted in Vancouver, Canada, in 2009. This …

Increased global sharing of public health research data has potential to advance scientific
progress but may present challenges to the interests of research stakeholders, particularly in …

Background There is increasing recognition of the importance of sharing research data
within the international scientific community, but also of the ethical and social challenges this …

Public participation processes are touted as an effective way to increase the capacity and
legitimacy of environmental assessment and the regulatory process that rely on them …

The willingness to donate human biological material for research purposes is shaped by
socio-cultural factors; however, there is a lack of studies analysing the social perception of …