Patients' with chronic kidney disease and their relatives' perspectives on advance care planning: a meta‐ethnography

CE Frandsen, H Dieperink, K Detering… - Journal of Renal …, 2022 - Wiley Online Library
Introduction Advance care planning is a process that supports adults of any age and stage of
illness in understanding and sharing their values, life goals, and preferences regarding …

SPIRIT trial: A phase III pragmatic trial of an advance care planning intervention in ESRD

MK Song, ML Unruh, A Manatunga… - Contemporary clinical …, 2018 - Elsevier
Advance care planning (ACP) is a central tenet of dialysis care, but the vast majority of
dialysis patients report never engaging in ACP discussions with their care providers. Over …

Dyadic shared decision-making in dialysis: An interpretive phenomenological inquiry.

R Sledge, D Meyer, K Heiden-Rootes… - Families, Systems, & …, 2023 - psycnet.apa.org
Introduction: Caregiver and family engagement in dialysis decisions varies over the end-
stage kidney disease treatment trajectory, with family preferences as primary consideration …

“I wish someone had told me that could happen”: a thematic analysis of patients' unexpected experiences with end-stage kidney disease treatment

N DePasquale, A Cabacungan… - Journal of patient …, 2020 - journals.sagepub.com
Background: Preparedness regarding prognosis and treatment options enables patients to
cope with uncertainties, make value-based treatment decisions, and set treatment goals …

Implementing advance care planning for dialysis patients: HIGHway project

G Rodriguez de Sosa, A Nicklas, M Thamer… - BMC palliative …, 2022 - Springer
Background Patients undergoing hemodialysis have a high mortality rate and yet
underutilize palliative care and hospice resources. The Shared Decision Making-Renal …

Incorporating the Clinical Frailty Scale into routine outpatient nephrology practice: an observational study of feasibility and associations

AP Kumarasinghe, A Chakera, K Chan… - Internal Medicine …, 2021 - Wiley Online Library
Background There is an unmet need for routine and accurate prognostication of older adults
with end‐stage kidney disease (ESKD) and subsequently inadequate advance care …

[HTML][HTML] Kidney failure patients' perceptions and definitions of health: a qualitative study

R Sledge, BP Concepcion, B Witten, K Klicko… - Kidney Medicine, 2023 - Elsevier
Rationale & Objective Patients with kidney failure who have used multiple treatment
modalities are a unique source of information for how different options may best fit their …

Palliative and end-of-life care in nephrology: moving from observations to interventions

ND Eneanya, MK Paasche-Orlow… - Current opinion in …, 2017 - journals.lww.com
Palliative and end-of-life care in nephrology: moving from o... : Current Opinion in
Nephrology and Hypertension Palliative and end-of-life care in nephrology: moving from …

The patient's relationship with the General Practitioner before and after Advance Care Planning: pre/post-implementation study

AGM van der Plas, JEAP Schellekens, JJ Glaudemans… - BMC geriatrics, 2022 - Springer
Abstract Background General Practitioners (GPs) are central in the care of Dutch older
people and in a good position to have Advance Care Planning (ACP) conversations …

“Maybe They Don't Even Know That I Exist”: challenges faced by family members and friends of patients with advanced kidney disease

AM O'Hare, J Szarka, LV McFarland… - Clinical Journal of the …, 2017 - journals.lww.com
Results The following three themes emerged from interviews with patients' family members
and friends:(1) their roles in care and planning were fluid over the course of the patient's …