A roadmap for the human gut cell atlas
The number of studies investigating the human gastrointestinal tract using various single-
cell profiling methods has increased substantially in the past few years. Although this …
cell profiling methods has increased substantially in the past few years. Although this …
[HTML][HTML] Assessing diversity in newborn genomic sequencing research recruitment: Race/ethnicity and primary spoken language variation in eligibility, enrollment, and …
Purpose Diagnostic genomic research has the potential to directly benefit participants. This
study sought to identify barriers to equitable enrollment of acutely ill newborns into a …
study sought to identify barriers to equitable enrollment of acutely ill newborns into a …
A global perspective on embryological and fetal collections: Where to from here?
Human fetal and embryos collections (FECs) peaked in the late 19th century, an era before
informed consent, and hence have unclear provenance. These collections are not only …
informed consent, and hence have unclear provenance. These collections are not only …
Population curation: The construction of mutual obligation between individual and state in Danish precision medicine
IM Gjødsbøl, JBL Knox, L Skovgaard… - Social Studies of …, 2024 - journals.sagepub.com
How do precision medicine initiatives (re) organize relations between individuals and
populations? In this article, we investigate how the curation of national genomic populations …
populations? In this article, we investigate how the curation of national genomic populations …
Ethical considerations in data collection and analysis: a review: investigating ethical practices and challenges in modern data collection and analysis
GN Okorie, CA Udeh, EM Adaga… - International Journal of …, 2024 - fepbl.com
In an era where data profoundly influences decision-making across various sectors, this
comprehensive review critically examines the evolving landscape of data science ethics …
comprehensive review critically examines the evolving landscape of data science ethics …
Precision Medicine
F Molnár-Gábor - Handbook of Bioethical Decisions. Volume I: Decisions …, 2023 - Springer
Precision medicine combines genetic, environmental and lifestyle variability to inform
disease diagnosis, treatment and prevention, allowing exact medical interventions both on …
disease diagnosis, treatment and prevention, allowing exact medical interventions both on …
[HTML][HTML] Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: guidance for policy
H Longstaff, J Flamenbaum, E Richer, J Egar… - CMAJ, 2022 - Can Med Assoc
• This guidance for policy proposes a core set of elements for documents used to obtain
participant consent for human genomics research in Canada.• The core set of elements …
participant consent for human genomics research in Canada.• The core set of elements …
Clinical Genetic Testing in Kidney Disease and Transplantation: Logistical, Ethical, Legal, and Social Considerations
T Schiff - Current Transplantation Reports, 2023 - Springer
Abstract Purpose of Review The role of genetics in renal disorders is being increasingly
recognized, prompting the need to describe and address barriers to meaningful …
recognized, prompting the need to describe and address barriers to meaningful …
[HTML][HTML] Éléments fondamentaux des documents de consentement à participer à la recherche sur le génome humain au Canada et de la Bibliothèque génomique …
H Longstaff, J Flamenbaum, E Richer, J Egar… - CMAJ, 2022 - Can Med Assoc
• Cet ensemble d'éléments fondamentaux contient l'essentiel requis pour s' assurer d'une
mobilisation appropriée de la part des personnes participantes et du personnel en …
mobilisation appropriée de la part des personnes participantes et du personnel en …
[PDF][PDF] Exploring the ethical dimensions of sequencing newborns' genomes: Rapid literature and evidence review
KI Morley, B Leach, L Hocking, J Dawney… - 2022 - files.genomicsengland.co.uk
1.1. 1 Broad context for this research Interest in genetic testing has significantly increased
since the mapping of the human genome in 2003, offering great insight into disease risk …
since the mapping of the human genome in 2003, offering great insight into disease risk …