Concerns about genetic privacy affect individuals' willingness to accept genetic testing in
clinical care and to participate in genomics research. To learn what is already known about …

Limited and inconsistent evidence exists on the associations between dietary patterns and
overweight during childhood. The present study describes dietary patterns of three-year-old …

Purpose: To assess public reactions to the June 26, 2000, announcement that scientists had
nearly finished mapping the human genome. Methods: We conducted a random-digit …

With few exceptions, existing research on attitudes toward genetic testing and prenatal
diagnosis is based on small studies using nonprobability samples of specialized …

Objectives: To explore parental attitudes and beliefs about genetic testing of children for
conditions that present throughout the life cycle. Methods: Twelve semi-structured focus …

Background There is little evidence on which strategies are effective in recruiting minority
groups in low-budget health surveys. We evaluated different recruitment strategies for their …

We report a unique, collaborative effort by users and providers of genetic services to arrive
at outlines for optimal ethics and clinical practice. Using focus groups of consumers (users) …

Abstract Approximately, 80,000 Americans are affected by sickle cell disease (SCD) and it is
the most common inherited blood disorder in the United States. SCD is most prevalent …

To facilitate discussion, this paper describes various types of collections of specimens, their
uses in research, types of identifiers, requirements for informed consent, third-party access …

A family health history-based risk assessment is particularly valuable for guiding cancer
screening and treatment strategies, yet an optimal implementation depends upon end-users' …